Man Turning into Stone. Growing a second skeleton where my muscles and tissues turn to bones. Fibrodysplasia Ossificans Progressiva (FOP). AMA!
Hey! JoeySooch here!! I have an extremely rare disease called FOP where my muscles, tendons and ligaments turn into bones. Thus locking my body into place permanently. The only muscles not affected are my smooth muscles like my heart and tongue. I lost 95% of my body's movement.
[Having an emotional breakdown talking about my disease
Follow me on instagram!
More proof https://imgur.com/a/8fTzUcZ
I hope this will suffice because I don't have a pen near me.
There’s gene therapy that can be a cure for my disease. Help me fund the research so we can put my disease on the cured list. I may not be able to take advantage of the gene therapy but future kids will.
Lets raise $1,000!