zayoe4

Sorry, I saw wedding vlog and thought I was your wedding. I'm not the type to click on links, doh. Anyway, you're disease sounds like a super power, it sucks that it has really caused you so much pain. I hope researchers can find a way to reverse this disease.

Not sure if you are still answering questions, but if you are, do intend to let the disease run its course, or do you plan on partaking in PAS(physician-assisted suicide). Also, how did you meet your wife? How did she deal with the news of your illness?