Highest Rated Comments

-Sociology-10 karma

I just briefly googled and read "a brief 4-day course of high-dose corticosteroids, started within the first 24 hours of a flare-up, may help reduce the intense inflammation and tissue edema seen in the early stages of the disease" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3253727/

I was hoping with your experience you could help me understand a little more about FOP. Anabolic steroids' have been shown to increase muscle mass even without physical activity. You described the flare ups happening when you were exercising and I was curious, does the muscle stimulation/hypertrophy cause the tissue edema or is it the repair process. In other words would using anabolic steroids help you keep muscle mass while you can't stimulate the muscles, or would they be ineffective/harmful?

I think you're an incredibly admirable person for raising awareness and for living your life with purpose. If you don't have time to reply to me specifically I understand, I am one of many curious people here. I hope you find that many people appreciate what you're doing and your courage to share your life and journey through it.