Hey I’m so happy to see someone with FOP doing an AMA!!! One of my in-laws has FOP, I believe he’s the only person with FOP to have become a medical doctor (he was the only one at the time he became a doctor in 2012, idk if anyone else has since then), and the IFOPA has been one of my favorite charities for almost a decade. This may sound weird but I actually think I’ve heard of you, I did a lot of research about FOP and the FOP community like 8-10 years ago and.
Anyway, I’m so excited to hear about gene therapy and advancements in treatment! Can the current treatments undo any of the ossification that has already occurred? Or is it only preventative, stopping or slowing the progress?
forgetmeknotts35 karma
Hey I’m so happy to see someone with FOP doing an AMA!!! One of my in-laws has FOP, I believe he’s the only person with FOP to have become a medical doctor (he was the only one at the time he became a doctor in 2012, idk if anyone else has since then), and the IFOPA has been one of my favorite charities for almost a decade. This may sound weird but I actually think I’ve heard of you, I did a lot of research about FOP and the FOP community like 8-10 years ago and.
Anyway, I’m so excited to hear about gene therapy and advancements in treatment! Can the current treatments undo any of the ossification that has already occurred? Or is it only preventative, stopping or slowing the progress?
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