Highest Rated Comments

SnoopyTheBaron37 karma

Don’t know if anyone has mentioned Carol Ann Orze yet but she had FOP and donated her remains to the Mütter Museum in Philadelphia. You can go and see her skeleton as well as the solidified tissue that is attached. They actually have another more famous specimen Harry Eastlack who is right next to Carol showing the same disorder.

Great reference for anyone interested in this disease.

Have you heard of these cases before OP? Carols is particularly interesting to me because she was under the care of Dr Frederick Kaplan who is basically the top FOP guy in the world at the only place that does research into FOP.