I'm dying at 33 from liver cancer as the result of a rare genetic disease and accidentally roused a massive campaign to help me see Avengers: Endgame early. Ask me anything!
... Unless it's about contact between myself and Disney. I'll answer "Disney reached out and we're discussing options".
A post of mine in r/marvelstudios evolved into a greater conversation about death and dying, and became the focus of a campaign for me to see Avengers Endgame before I die using the Avengers4Alexander hashtag. It worked - Disney have since contacted me.
I have Fanconi Anemia (FA) which interferes with my body's DNA repair. I've survived mouth cancer so far, but now face liver cancer and the threat of bone marrow failure. I get most of my nutrition through a PEG feeding tube because my mouth doesn't work well.
My sister died from the same disease but she was never diagnosed with FA while alive. I devote a lot of my time now to try and raise awareness about my disease by doing interviews, and help direct people to donate to research for a cure.
My hope is that at the least, people like my sister will get diagnosed before they undertake dangerous treatment, and at most that a cure will be created.
You can donate to the Fanconi Anemia Research Fund at www.fanconi.org/donate or to the Leukaemia Foundation at www.leukaemia.org.au/get-involved/make-a-donation/
Edit: Six hours later and I think I need a nap! Thank you all for your questions, and your interest. I'll come back later to try and answer anything I missed.