IAMA caregiver and boyfriend to a woman who is severely disabled by endometriosis. It's endometriosis awareness month let's talk!
Hoping we can spark a conversation about this. Here's some background info-
We have been together for about 4 years. She was diagnosed about two years ago with endo. A disease that affects 176 million women, with no cure.
Everyday she deals with crippling pain, fatigue, cramps, anxiety, depression, and more. Getting out of bed is tough. She needs help dressing, showering, eating, and anything that involves standing for more than a few minutes. This drastically changes life.
We currently have a large network of doctors working with us to regain quality of life back as best we can.
She is standing by and I got the keyboard- Willing to talk about any of it! The disease, how it's affecting her, me, us. The treatments we've tried, resources we've explored, repeatedly getting denied by disability. Anything!
Edit: verification (as best I could think of!) http://imgur.com/1BBrsMA
Update: petition to recognize endo as a disability and provide financial support.
Update 2: Lupron alternative- Pine Tree Bark- seems to be a common theme in the convo. Start here- http://www.medicalnewstoday.com/releases/64791.php
Update 3: 12:45am : Have to call it a night. Thanks all, we have had a fun night hanging with y'all. Feel free to keep the questions/comments coming. I'll respond as I can!