My name is Zach and I was born in Canberra, Australia. I have the 2nd most serve type of anaphylaxis. I have lived my whole life with this condition so ama!

proof

Edit: I'm off for the night. It's like 11 and I have school tomorrow, ill get to these tomorrow. Here is what I’m allergic to (off the top of my head) Quinoa, Dairy, Eggs, nuts, soy, gluten, all meats except pork and fish, kiwi fruit. For all those wanting to know what I can eat. Do the thinking yourself, it it’s not in the list above then I can probs eat it. Edit 2: I’m really off oh shoot it’s 3:45 am, I’ll answer your questions tomorrow good night reddit.

Comments: 1895 • Responses: 88  • Date: 

bears-bub1353 karma

I can only imagine your parents trying to feed you as a baby with this condition. How were you fed as an infant? Speciality formula or did your mum live a restricted diet so she could feed you? (I spent almost a year dairy, soy, egg and gluten free whilst breastfeeding which I bet is far easier to do now than it was when you were a baby!)

Thegamingpeng9671165 karma

Well, I didn't get breastfed. I had to have a special formula.

Schemen1231257 karma

So, I assume you allergic to a lot of food stuff. But what can you eat?

Thegamingpeng967357 karma

ill reply to this later when i can make a decent list.

Thegamingpeng967198 karma

Btw I have replied(ish) in the sub text of the first post.

rowgw77 karma

Are you able to take honey, unsweetened chocolate, or maybe most vegetables?

Thegamingpeng96776 karma

Yep

bdrawing1200 karma

How many times have you accidentally triggered the anaphylactic response and what do you have to do when it happens?

Thegamingpeng9672052 karma

As I can remember I have never had a reaction, but the way my parents found out was when I got fed breast milk and had to be driven in an ambo to hospital.

horizonview129 karma

How do you know you’re that severely allergic to all these things if you never had a reaction?

Thegamingpeng967234 karma

Prick testing, I can never be 100% sure unless I eat it but it’s most likely I am.

metarinka176 karma

I don't want to give false hope, but I had a nut allergy and prick testing showed I was 100% deathly allergic to it, die on contact.

Turns out I just had very sensitive skin and prick testing was innaccurate. While I certainly can't eat it some of them and will get violently ill, I won't go into shock.

Thegamingpeng967143 karma

Ye, they do a control with saline. But it’s better to be safe then to be sorry (I’m not a contact shocker only ingesting)

Thegamingpeng967109 karma

When i do have one i have to stab myself with a needle.

ImayBeBlindBro954 karma

SECOND?! It gets worse?

Thegamingpeng9671502 karma

Some people can get into anaphylactic shock when they touch something they are allergic to.

rbaltimore588 karma

I have an experience with that actually. I used to teach Hebrew at a religious school at my synagogue that doubled as a private day school during the week. The day school was nut free, the religious school was not. So one Monday morning a kid goes into anaphylactic shock when school starts. His epi-pen isn’t enough, he has to go to the hospital via ambulance, almost dies. It took a lot of detective work, but they figure out that the kid who used allergy kid’s seat every Sunday had a PB&J sandwich the day before. A molecule or two was left behind after cleaning and when the allergy kid touched the desk Monday morning, BOOM, anaphylaxis.

Our entire synagogue is now nut free 100% of the time.

Thegamingpeng967161 karma

Yep, I’m not that bad I have the ingest it but otherwise yea BOOM.

GuineveresGrace175 karma

Can confirm. I’m ANA to alcohol, via ingestion AND contact. Someone decided to be ‘helpful’ and whack hand sanitizer on me when I was in the grocery store, and it put me into anaphylaxis. Last thing I want to do is be in a hospital unable to breathe right now.

So, yeah. Dumbest allergy ever. Have to be careful with everything from the accelerant used in inhalers to making sure my boyfriend brushes his teeth really well (and washes his lower face) before kissing me if he’s been drinking.

Thegamingpeng96777 karma

Wow ethanol allergy? That must really suck.

GuineveresGrace156 karma

The worse the allergy has gotten, the more restrictive things have become. No bars on St Paddy’s Day, only go to concerts with friends I trust well enough to stab me in the thigh with an epi-pen. Warily avoiding certain foods in case people forget to tell me it’s made with a wine sauce (I know it’s meant to burn off during cooking, but there was this one time in a fancy restaurant that’s kind of made me paranoid).

No normal perfumes. Making sure the medical staff don’t automatically reach for alcohol prep pads. Reading every label of cleaning products. Searching for alcohol-free shampoos, skincare, and makeup.

Thegamingpeng96755 karma

Hmm that sounds really bad, like the alternative for alcohol pads would be iodine, and that gives you a red stain.

TheseStonesWillShout596 karma

Are your allergies related mostly to food or do you have problems with grass, pollen, animals, etc.?

Thegamingpeng967440 karma

Both

lokten168 karma

[deleted]

Thegamingpeng967118 karma

Yeah I am.

brontepistachio458 karma

Hi there! What is in your special drink?

-whine-o343 karma

"Not suitable for general use" well damn...

Does this mess with your stomach/bowels or are you basically used to it now?

HurricaneHenry324 karma

55% corn syrup. I wouldn’t drink that if I got paid.

Thegamingpeng967330 karma

Ye corn syrup is shit for you, but I could live with only that.

nickaggie53 karma

Is that EleCare?

Thegamingpeng96732 karma

Yep

nickaggie25 karma

I know it's out of necessity, but how do you stand the taste? My son was on that for 1 year and it tastes so bad

Thegamingpeng96753 karma

Eating it for as long as I can remember. It tastes like nothing to me.

mspaint222 karma

So does this pretty much regulate your daily nutrient needs or are there side effect to tbe fact that you can't eat most foods?

I have a really hard time getting nutrients into my body for a variety of reasons (none of those reasons being clinical) and I drink like the regular store bought ensure and similar because otherwise I'm faint and get headaches all the time .

Thegamingpeng9673 karma

I eat this on top of my normal meals, otherwise If I only had the drink and some snacks I would shit like rocks and always be hungry.

DDenlow7 karma

Ensure

Thegamingpeng96712 karma

No it’s elecare

jimmycarr1439 karma

What do you wish everyone knew about people living with conditions like yours?

If you could remove the anaphylaxis or gain any superpower of your choosing which would you pick?

Thegamingpeng967804 karma

One main one was when I was in primary school, I got bullied a lot because everyone would think I was contagious. And I would probably pick a superpower as I have never tasted what I’m allergic to so I don’t crave it.

whats_a_bylaw393 karma

What do you eat on your birthday?

Thegamingpeng967644 karma

I had a really weird tasting cake made a form like rice flour and cocoa beans.

eleanor61322 karma

Is there a food that you’re the most curious to try?

Thegamingpeng967549 karma

Probs vegemite on toast. (I’m allergic to both)

petty_cash_thief242 karma

This had to make childhood tough. How early on did you display symptoms? Were you an infant? What was diagnosis like?

Edit: rogue apostrophe

Thegamingpeng967226 karma

Almost dying xD. But i don't remember was very young. I have also been seeing a specialist for as long as I can remember.

RsTheHotOne200 karma

My 11 year old son has a disorder called eosinophilic esophagitis. It causes pain and swelling in his esophagus due to misbehaving eosinophils. Because of this, he is on a very limited diet and drinks a formula called Elecare to replace his calories and proteins. He has 17 safe foods, and has an anaphylactic milk allergy.

As an older kid with similar issues, what advice can you give my son on how to handle life with so many allergies?

Thegamingpeng967238 karma

Just be careful, don’t take risks. If you don’t know don’t eat it. And life is crap sometimes you gotta deal with it. Oh ALLWAYS CARRY YOUR EPIPEN. (the formula I take is elecare)

RsTheHotOne90 karma

Thank you! He’s actually 11 today!!! I’ll pass on that advice to him. I knew it was Elecare by the back of the can :) Look at it long enough and you just know. He’s been drinking it/ g tubing it since was 8 mos old.

Have they ever talked about feeding tubes with you? Also, have you tried the flavoured Elecare or the flavoured neocate?

Thegamingpeng96783 karma

Nope with the tubes, I have food intolerance on top of my allergies so they didn’t give me the flavoured version. And np with the advice pass my happy birthday wishes to him.

RsTheHotOne22 karma

He has some intolerances too - and Fructose malabsorption disorder. It’s a shame you haven’t had the flavours. If your specialist ever talks about trying it, you should. It’s some variety in the boring life you have food wise.

I’ll pass the wishes on for sure!

Thank you for your answers. It’s a tough life and I know, for my son, it isn’t going to get easier. Any advice on how he can cope with his life as he gets older is great.

Thegamingpeng96740 karma

They won’t put me on the flavoured elecare. As I was bullied in primary, I’ve allways been tough as nails, but what got me through that were some really good friendships and knowing how bullies think. Not giving them attention is really helpful. Coping with the allergies my train of thought was I never ate it so why would I want to eat it? Making good freindships can really help you though tough times.

RsTheHotOne14 karma

Again, thank you! I wish you luck in your life. Stand strong, and live without fear.

Thegamingpeng96716 karma

Np, you too

chique_pea166 karma

Is the root cause of your anaphylaxis known?

Thegamingpeng967155 karma

No its not known.

suplehnamdamasipoolf158 karma

What would your Death Row final meal be?

Thegamingpeng967255 karma

Probs a pork chop tbh.

NoFucksGiver410 karma

I mean if I were you and about to die anyway, I would probably go ahead with that vegemite on toast

Thegamingpeng967149 karma

Lol

MinnieMantle16 karma

I’ve said that if I were on death row, I’d want some kind of stuffed shellfish, and the stuffing would have walnuts and almonds in it.

Btw, going into anaphylaxis as an adult, when you’ve never done it before, sucks. If you haven’t had that joy, lmk and I can describe it for you.

Thegamingpeng9677 karma

I’ve been told it’s like your Adam’s apple is too big for your throught. I hope to never go into shock tho.

DANIELG360128 karma

How are you sure that you still have these allergies? Are you regularly tested for everything?

Thegamingpeng967206 karma

I get tested every year. I cant be 100% sure because I haven't eaten it but I do use prick testing.

advisor_throwaway181125 karma

Favorite food or meal that doesn’t trigger a reaction?

Thegamingpeng967279 karma

I love a mean pork chop. (the only meat I can eat)

advisor_throwaway18182 karma

Are you able to switch up how you season it? Or do you have to keep things pretty bland?

Thegamingpeng967168 karma

Yea pretty bland just like salt and MORE SALT. spice doesn't sit well with me.

ac1333281 karma

I'm sure you've thought of this, but different cooking techniques will give different flavours. I bet you're an expert in cooking pork chops to perfection!

I assume that means you can use pork fat as a cooking ingredient for frying etc?

Thegamingpeng96756 karma

Yea

royaltastetester30 karma

Can you eat a smoked pork chop?

Thegamingpeng96753 karma

Well, I can eat bacon and ham so I would assume so.

whizzwr2 karma

Wait wait, so no beef, no chicken/poultry, no fish? Whoa man..

Thegamingpeng9672 karma

Well some people say fish is a meat some people don’t but I can eat fish. But none of the others.

azeronhax106 karma

Your special drink container seems small, does it cost a whole lot of money, in order to live?

Thegamingpeng967198 karma

Its on the pbs otherwise it would cost like 2k to live per month.

omega-00172 karma

Ssshh don't tell the Americans they'll get confused.

Thegamingpeng967101 karma

Ahahah yea true

Thegamingpeng96798 karma

Ps, sorry about messy handwriting.

embersxinandyi341 karma

Dont worry man, we'd all write like that if we were allergic to pencils

Thegamingpeng96770 karma

Ahah nice.

namdude037377 karma

Do you get multiple flavors or do you need to eat/drink the same thing every day?

Thegamingpeng967127 karma

The drink is flavoured the same EVERY SINGLE TIME. (it apparently smells like shit but i have gotten used to it and cant tell.)

Poopywall75 karma

What's your favourite food?

Thegamingpeng967110 karma

Pork

kitket1277 karma

After reading some of your other replies this made me crack up lol im glad you’re able to have pork and rice that sounds pretty good to me

Thegamingpeng96760 karma

Yeah it’s keeping me alive and sane.

rewardsthroway60 karma

Did your parents have any dietary issues or practiced a specific diet?

Thegamingpeng96744 karma

nope

Trumanhazzacatface53 karma

Is there any places that is an absolute nope for you? Is there any restaurants that offer you safe food?

Thegamingpeng96778 karma

Nothing really as long as I'm careful and don't go into like a cheese factory or a flour one. Too risky to eat out parents just cook for me.

Alyazmalim5751 karma

What about medical stuff like surgery or medication? Are your also allergic to substances from that area?

Thegamingpeng96749 karma

Nope, not really. Except for flavouring and stuff, that might set me off.

ellieneagain48 karma

How often do they reassess how allergic you are to different things?

Thegamingpeng96733 karma

once a year

StonerGecko44 karma

Of all the foods you can’t eat, which one is hyped the most?

Thegamingpeng96786 karma

probs baked goods like cakes and bread and things.

toofatforhills42 karma

Shout out from Canberra! Cool idea for an AMA.

Any luck with goodberry’s/rubies?

Thegamingpeng96725 karma

Nope allergic

beatboxa40 karma

What are some of your allergies? Are you allergic to water or anything that is difficult to not come in contact with?

Thegamingpeng96737 karma

I don't have allergies to water or anything that server just ALOT of allergies.

tziganea34 karma

Hey Zach!

Do you know of anyone else who has the same condition- a family member, or people in support groups (if you are part of any)?

Are you able to spend time outdoors?

Thegamingpeng96737 karma

Nope I’m the only one, I also love going outdoors.

jumpup29 karma

what do you eat for breakfast?

TacCom59 karma

Special Drank

Thegamingpeng96784 karma

your not wrong there, tho sometimes i have bacon with no eggs.

Winterplatypus24 karma

If you got to magically wave a wand and remove your allergy to just one thing, what would you pick?

Thegamingpeng96730 karma

Probs gluten or eggs

sandfire22 karma

Is it at all related to MCAS, or something different?

Thegamingpeng96714 karma

The cause is not known.

BostonBlackCat15 karma

Are allergy injections at all effective for you? Can they lessen your allergic reaction to environmental allergies at least, even if they can't cure you?

Thegamingpeng96710 karma

Never had them

cjstevenson114 karma

What common over the counter medicines can you not take?

Thegamingpeng96711 karma

hmm nothing really.

Kami9711 karma

How has travelling been for you? Is it more difficult to find food when you are in other places?

Thegamingpeng96712 karma

Travelling over seas is hard, I’ve only discovered last year that I can travel overseas on a cruise, they managed to keep me alive and well. But interstate is not that bad.

FBlack6 karma

I heard years ago about a gal who had to drink orange juice cause she was allergic to water, any kind of issues of that or worse level?

Thegamingpeng9679 karma

Im not allergic to water or the like but I am allergic to a lot.

okudenconstruct5 karma

Have you tried hook worms?

Thegamingpeng96710 karma

Nope, do they taste good?

shaddowkhan5 karma

Do you drink Ensure?

Thegamingpeng96711 karma

No elecare

hummingbirds_R_tasty3 karma

Dude, I'm so sorry. This sucks for you.

Has your Allergist given you some hope that you will age out of this? Just like over time we can become allergic to things. Is it possible that some of those things your allergic to will start to fade. Or would allergy shots help?

I'm sorry if that sounds stupid. I'm sure that I am not understanding this correctly. Yes, we can all have allergies. It's just not to volume or degree you have them, but also it's the severe anaphylaxis reaction that is so rare?

Thegamingpeng9673 karma

They say I would and kept on giving me ages. But they have given up.

Rasalas89103 karma

Is it genetic or did something "break" your immune system while you were a fetus (like medicine that's normally considered ok for pregnancy or was she ill with you in your belly)?

Do you react the same if your food is cooked through?
(I have an allergy to carrots, but it doesn't seem to affect me when it's cooked. Seems to be different with hazelnuts though. Nutella recently triggered a slight reaction)

Does hyposensitization work?

Thegamingpeng9677 karma

I’m not sure about the cause, and no cooking stuff doesn’t help. The doctors won’t let me try new stuff because I’m just allergic to so many things.

ExpansiveAcorn72 karma

What is it like going to restaurants? Birthday Party, date, family outing.

Thegamingpeng9675 karma

I have to bring my own food.

illsqueezeya2 karma

What is the one food you wish you knew how it tasted?

Thegamingpeng9676 karma

Vegemite on toast (I'm allergic to both)

SevroRedjive2 karma

How many times have you watched the movie Bubble Boy?

Thegamingpeng9676 karma

Havent seen it yet, XD

PanMadao2 karma

Do you have to use a special toothpaste to clean your teeth?

Thegamingpeng9672 karma

Nope

derpbek2 karma

How much water do you drink daily?

Thegamingpeng9673 karma

I exercise a lot so I drink about 10 cups a day.

JTCMuehlenkamp1 karma

What would you be more allergic to: one horse-sized duck or a hundred duck-sized horses?

Thegamingpeng9672 karma

I’m allergic to none of them.

Lanolin16181 karma

Are you vaccinated?

Thegamingpeng9672 karma

Yep

Fyodor_Dostoyevskeet0 karma

Are.... you allergic to sex juices?

Thegamingpeng9673 karma

Hmm I don’t think so.

sarahelal-4 karma

What’s the best tasting food you’re allergic to?

Thegamingpeng9676 karma

never tasted it so don't know.