I am a cancer survivor. I went from a 25cm inoperable, incurable tumour to complete remission. AMA!
I'd like to share my experience with cancer and answer questions to anybody interested. In August 2019 I was diagnosed with kidney cancer, at the age of 31 and with no previous medical history. This was in the UK, for those interested. At 25cm the tumour was absolutely gigantic, and after much consideration deemed inoperable. My health quickly deteriorated. I was having to use a wheelchair, and lost around 25kg within a few months. A biopsy first determined it to be sarcoma with a high degree of certainty. By this point a cure was off the cards, and I had come to terms with fighting for survival the rest of my life. A week after the sarcoma diagnosis, further analysis of the biopsy confirmed it wasn't sarcoma but instead an incredibly rare cancer called Adult Wilm's.
I received an intense course of chemotherapy, at the time considered palliative, which miraculously shrank the tumour to about 10-20% of its original size within about 5 months. At this point it was possible to remove the tumour surgically. It was a major effort, requiring a large team of surgeons, but I was fortunate enough to get this done at the last minute in early March 2020, shortly before covid hit the NHS and disrupted treatment for many other patients. The tumour was successfully removed, along with my kidney, gall bladder, adrenal gland, and part of my liver, as well as some other bits. I also caught covid while recovering in hospital, but fortunately I was able to get over it without requiring treatment.
I continued to receive radiotherapy and chemotherapy after surgery and was given the all clear in August. In all, I stayed in 5 different hospitals, spent approximately 3 months as an inpatient, had around 50 chemotherapy sessions and 13 radiotherapy sessions. Much of this was during the first wave of covid, pretty poor timing! It's now been over a year since surgery and I'm still in complete remission. I'm back to being fully functional, though not nearly as fit as I used to be. It's not over yet, but normality has returned to my life and the future is looking very positive. Ask me anything!
Photos and verification: https://imgur.com/a/mlU5Dhm
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