IAmA 27 year old with incurable stage IV cancer. I've had radiotherapy, surgery and chemotherapy and I'm taking part in a gene therapy trial, AMA!
Pretty much what the title says. I was first diagnosed with Sarcoma in February 2018, had radiotherapy and surgery to remove the tumour. Then it came back in May 2019, I was told it was incruable and I had 2-3 years left if I was lucky. Since then I've had chemotherapy and it was stable for a year. It has since started growing again and I am now taking part in a gene therapy trial.
Edit: wow this blew up, thanks to you all for your questions! A few points that might be important.
I have a wife and 7 month old. I am physically well and mostly symptom free.
Edit 2: wow, I'm trying to keep up with all the questions, there are some excellent ones for sure! One thing that is cropping up is regrets. I am very happy with my life so don't have any major regrets. I never grew a proper beard or moustache, but I'm doing that now, much to my wife's annoyance!
Edit 3: I live in London and in the UK we have free healthcare so haven't had an issue with cost. I cannot believe how tough it would be to have cancer and worry about funding treatment
Edit 4: thank you all so much for your kindness and insightful questions and thanks for the awards.
Edit 5: I'm amazed at the response to this. I was expecting maybe a few dozen questions if I was lucky but wow. I've since been to sleep and woken up and answered more questions. I think I've answered them all. There has been some overlap, so if I didn't reply to you, check and I've probably answered it before.
I'm going to call it a day now but thank you all so much for your insightful questions. If you're still interested or have something to ask, feel free to DM me.
The last thing I'll say is a few people have asked about what advice I would have to give others, the main things would be:
1) be kind, you don't know what people are going through and kindness to a stranger benefits everyone
2) find what and who you love and don't let go. Try lots of different things to see what you enjoy and run with it. Enjoy your life.