My 10 y/o son just completed two rounds of CAR-T in 2019 to treat his leukemia (ALL) which has relapsed multiple times. His specific therapeutic was Kymriah.
The CAR-T cells did not last nearly as long as they would have liked, and technically by protocol both of his treatments “failed”, however, he is still in remission 15+ months later, which is the longest he’s ever been in remission. Just making the point that this is all very new and not to be discouraged if the treatment doesn’t specifically conform to protocol. It might still do the trick. Wishing you the best of outcomes!
We actually just came back from Disney World and Universal yesterday, thanks to CAR-T and his doctors. This might not have been possible otherwise 🙌
KnuckleSangwich38 karma
There is hope, hang in there!
My 10 y/o son just completed two rounds of CAR-T in 2019 to treat his leukemia (ALL) which has relapsed multiple times. His specific therapeutic was Kymriah.
The CAR-T cells did not last nearly as long as they would have liked, and technically by protocol both of his treatments “failed”, however, he is still in remission 15+ months later, which is the longest he’s ever been in remission. Just making the point that this is all very new and not to be discouraged if the treatment doesn’t specifically conform to protocol. It might still do the trick. Wishing you the best of outcomes!
We actually just came back from Disney World and Universal yesterday, thanks to CAR-T and his doctors. This might not have been possible otherwise 🙌
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