IamA 21 year old girl with a rare tumor in my abdomen which has nearly grown to the diameter of a regulation soccer ball. AMA!
Hi there. I am a freshly 21 year old college junior who has been recently diagnosed with fibromatosis, or desmoid tumor, for the second time in my life.
(More info on the tumors here: http://www.dtrf.org/index.php/about-br-desmoid-tumors/about-desmoid-tumors.html)
My first tumor was found in 2005, at age 13, in my lower left abdomen. The surgeon told my parents I would probably not make it, as the tumor was wrapped around my large intestine, left ovary, and had already cut the blood supply to one kidney. I spent 2 years on various chemotherapy treatments, had a botched biopsy surgery which led to a colostomy, had a kidney and segment of my colon removed, and had the tumor removed in June 2007.
About 6 years later, it is back with a vengeance, about twice the size of my last tumor, measuring to 6.7 in. x 7 in. x 6.6 in. (171mm x 179mm x 168mm) as stated in my latest radiology report. It is flattening my stomach, aorta, and my only kidney's ureter.
Radiology Report from CT on 7/11/13: http://imgur.com/usAVdxI
Here are CT images from 7/11/13: http://imgur.com/a/XTxwr
Other pictures of my abdomen and myself: http://imgur.com/a/ker5H
I never thought I would have to go through this again, but I want more people to be aware of this type of illness and to appreciate life with all its ups and downs. Not sure if I need to include more proof, but I am sure someone will notify me if that is the case. So if you will, ask me anything!
EDIT: Hi again! I had the procedures done to save my kidney yesterday, and I have been in the hospital since.
Here I am: http://imgur.com/1MZYRYw
I am still trying to answer questions as much as I can. I will do my best to answer everything. Thanks for all the support.