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FearlessFilipina147 karma

Haha, if only I could carry a child in the upper left quadrant of my abdomen.

FearlessFilipina70 karma

My major is Law & Society, and my minor is forensic science. I wanted to go to law school, but I have many reasons not to go at this point.

I was definitely not too happy with my care this time around. Actually, I went to my university's clinic, had a blood test, urinalysis, and X-Ray in March. They wrote it off as scar tissue and constipation. Two months later, I ended up in the ER to find that it was the same tumor I had before. Then, it took another 2 months since we found it in the ER to the time the oncologists decided what to do with it, unsure if they should just do surgery or treatment. It grew about an inch between May and July, so I imagine it grew about two inches since I was seen in March to July. I started treatment to shrink the tumor in July, but it has since kept growing. Now, my doctor's office is so kind and caring. They know me by name even though I've only been there a handful of times. It's probably because I am the youngest patient by about 50 years.

It is actually not as painful as it looks like it would be. The worst problems I have with it are with my stomach. I haven't been able to eat as much as I should since my stomach is getting pushed upward and squished by the tumor. It also tends to press on my ribs when I slouch, so my posture has been great these past couple months.

Thank you very much for learning about these tumors. It is hard to come by much accurate information about them as mine has been slightly different from what many doctors and websites say about it. My first tumor was donated to research though!

FearlessFilipina28 karma

Hi everyone. I would edit, but I can't on mobile! I am going in for the nephrostomy and stint in my vena cava now, but I will be back to answer all my questions once I get to my room in the hospital. I will be under 23 hr observation.

Here are a few interesting things about me that might generate more questions:

  • I had a wish granted by the Indiana Children's Wish Fund.

  • I have had 10 surgeries.

  • My belly button was redone by a surgeon.

Thanks so much for the questions. I will be back after my procedures!

FearlessFilipina27 karma

It is funny because my doctors kept saying "Oh this tumor is slow growing." And after it grew an inch in 2 months, they said that it's hard to make generalizations about this kind of tumor since there are not enough cases to study.

FearlessFilipina26 karma

I am really sorry about your experience. I understand what you mean about the V.A. My dad has to deal with them as well. I just try to be as informed as possible and very proactive throughout my time to avoid preventable situations like that.