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Beetsnyams12 karma

I too suffer from a desmoid tumor , Im also a 22 year old female.however mines in my upper thigh about 11 cm by 9cm. Currently on tamoxifen and naproxen. Waiting to see if I respond or need to do chemo and or radiation. Thank you for doing this AMA, this is truly a frustrating disease. I wish you the best in your treatment and know your not alone!