Morning Reddit! Please keep me Company as im alone in the hospital over Christmas with a new kidney! Ask me Anything
Hallo! My name is Linus, im 28 and have been living with Alport Syndrom since I was born. I got it from my mother and 1 of my 2 brothers also have it.
This disease affects the kidneys and basically wears them down over time so eventually they stop doing their job, my brother needed his first kidney at 21 and had to replace that at 31 because his body rejected it. I just got my first one from my brother who didnt have the disease, we had a 99.9% match so its looking Good so far
Other then the kidneys this disease also affect my hearing (only in men tho) so I also have about 30% hearing left and hearing aids
Addin some pictures, some of they are a little nsfw but I made sure to leave my man parts out ;)
Me after waking up. http://imgur.com/a/RQFfwt0 the thing in my chest is a CDK for Hemo-dialys, you are welcome to ask questions about that 2 since I had dialys for 6months and got a looooot of bad stories like swelling in my Brain, seizures, putting the cdk in twice etc etc
My new kidney:) http://imgur.com/a/Iib3QLg
Worst part is prob having this cateter for 4 Days, pissing blood so im quite soar and its really painful to stand/Walk with http://imgur.com/a/DyAU3GF
They sure needed a lot of stuff in my arm! http://imgur.com/a/rokftXI
So yeah hopefully you guys got some questions since my brother just went Home and im all alone here in the hospital until prob tuesday maybe longer :/
Ask me Anything!
EDIT: Started a contest to name my new Kidney!
Sidney (the kidney)
Billy the Kidney
Stone... Kidney Stone
Urine P Pisser
Santas Little Helper
Kidney N Play
Lol just kidney
Ur in the Urine
I P Freelay
Kidney Stone Cold Steve Austin
Filter, the great beanish one
Santas little filter
New Kidney on the Block
Comment if you have any Good names and ill add them to the list and take the best in a day or so ^
EDIT2: IVE GIVEN UP! Its 4am haha and the comments doesnt end so I did a straw pool with 56 options! Vote on what you like and ill check it tommorow and choose the winner when we seem to be done!
EDIT3: Finally awake again was a long night :) the result of the contest are in!
1st: Kidney McKidneyFace!
2nd: Kidney Kardashian
3rd: Sidney the Kidney!
I Seriously love all of These 3, and some more, so imma call it all Three haha, and Save the list for my next kidney :p thank you all for this insane contest it was so much fun haha
EDIT4: so apperantly some awesome guy named u/rye381 have started a gofundme for me so I can get some new games During my Recovery.. this is just unbealiavle and shocking, I never thought anyone like this would go down. If you wanna share here is the link but dont feel pressured, Seriously all this SUPPORT have been the BEST CHRISTMAS PRESENT EVER! (after kidney mckidneyface ofc)
EDIT5: the contest vote is changing and the 1st and 2nd have changed, I will post the final result when it seems to slow down haha :)
EDIT6: a lot of people seem to ask for my paypal to chip some cash for games (really thank you all!) And if you truly want to just pm me. Dont wanna my email here cause I prob get spammed or sum haha :p But if you really want to and have the funds feel free to PM
EDIT7: MERRY CHRISTMAS MY CATETER IS OUT! Man it wasnt so bad! Didnt have a stint or anything a lot of people have mentioned here, they just suck out air from the bubble (didnt feel that at all) then yanked it out and that hurt a little like a kick in the balls and now I have a small burning sensation troughout my dick but its already going away (1min so far) so hopefully soon I can pee myself and Walk around easier ^ I might even go Home today!
EDIT8: My fiancee just sent me a pic of our Lovely Zheeb all dressed for Christmas so thought id share (some have asked for dog pics )
http://imgur.com/a/kSZoqlx And yes he hates wearing clothes so its prob all off already :p
EDIT9: ive finally caught up with the comments! Only took like 48h hehe :p will continue to post some updates today since I might go Home and then im thinking of a last pic of me at Home finally :D
Again THANKS FOR ALL THE SUPPORT I LOVE YOU ALL /Jesus/Thor
EDIT10: just got my Christmas dinner!
As you can see its some Christmas ham, an egg (i usually eat like 10 but usually have shrimp on) some veggies (the Purple one is awesome like root fruits) Janssons Frestele (like potato in Cream) some meatballs and sausuages and 2 different kinds of Sill (mustard and onion) and then ofc JULMUST to drink ^ its like I dunno almost cola flavour but musty/foamy like beer. And then some dessert ofc rice a malta
EDIT11: last Edit, im finally Home! Missed Christmas and will be home alone for 1 week now But its so Nice to finally be Home! Im going to shower tonight first time in 6 Days and eat nice food and Open my gifts!
Here enjoy this triumphant return pic of my week old unshowered self haha http://imgur.com/a/N63AOZi