neverthemood
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neverthemood63 karma
I wish you the best. I know how it is to stay in the hospital, be in pain and also bored.
I hope you’ll get healthy faster! Blessings!
How do you think it will affect your future life? Like, is this disease hereditary and can it affect your future kids?
neverthemood28 karma
People just don’t care!
I tried to look fine just to avoid the pitty looks and ‘gossips’. And everyone thinks I’m perfectly fine now.
I remained with restrictions for the rest of my life. I have pain everyday. I will do recovery for the rest of my life.
But when I want to leave early off work becaue of excruciating back pain, there are people who go like ‘oh my back hurts too i slept in a weird position’
THAT’S NOT THE SAME PAIN! Wtf
It affected me a lot in the beginning. Now I try to just ‘ impose’ my condition. When i’m asked to ‘hurry’ or just carry heavy things, I have to protect myself by simply refusing what can hurt me. Nobody will try to protect you for your condition. If you don’t stand up for yourself, nobody will.
Apart from a few very close family members, nobody believes or even tries to imagine the pain and the struggle
Even my own mother says I’m faking or exagerating it sometimes because ‘after 2 years I should be perfectly fine’.
neverthemood2 karma
I can confirm : people don’t take this seriously
I’ve been paralysed for 2 years. It took me a lot of recovery and I endured a lot of pain.
Now people asked me why didn’t I work for 2 years and have no recent experience?
I told them I was paralysed
‘ oh ok. ‘
Not to mention rhe mental struggle, the depression and that feeling of ‘pitty’ close people or family throw at you.
It’s devastating..
neverthemood1 karma
You are right (sadly) about the job thing
That’s part of my reason to try to hide or say I’m fine now.
If they see you weak or incapacitated, bye-bye to you. They don’t care. They want strong healthy workforce (that will sadly get sick over time by being overworked and stressed out).
It’s shitty
I can’t give you a proper advice. If you hide or minimize your condition, you may get the job. But then they will stress and pressure you more and nog believe when you will have special needs related to your condition!
Oh as a side note, i have an old coworker that’s about 60 yo. She always complains and acts shitty. And once I told her my back hurt me extremely bad (she knows my condition). And she said: you are young! At your age you are not allowed to complain.
Fuck you!
That was my thought. I guess I wanted to share it with someone since it just happened a few weeks ago.
So yeah, they don’t care. They all think they have the ‘hardest problems in the world’.
neverthemood92 karma
I can confirm : people don’t take this seriously
I’ve been paralysed for 2 years. It took me a lot of recovery and I endured a lot of pain.
Now people asked me why didn’t I work for 2 years and have no recent experience?
I told them I was paralysed
‘ oh ok. ‘
Not to mention rhe mental struggle, the depression and that feeling of ‘pitty’ close people or family throw at you.
It’s devastating..
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