neverthemood92 karma2018-12-06 14:46:07 UTC
I can confirm : people don’t take this seriously
I’ve been paralysed for 2 years. It took me a lot of recovery and I endured a lot of pain.
Now people asked me why didn’t I work for 2 years and have no recent experience?
I told them I was paralysed
‘ oh ok. ‘
Not to mention rhe mental struggle, the depression and that feeling of ‘pitty’ close people or family throw at you.
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neverthemood63 karma2018-12-22 14:07:03 UTC
I wish you the best. I know how it is to stay in the hospital, be in pain and also bored.
I hope you’ll get healthy faster! Blessings!
How do you think it will affect your future life? Like, is this disease hereditary and can it affect your future kids?
neverthemood28 karma2018-12-06 15:36:38 UTC
People just don’t care!
I tried to look fine just to avoid the pitty looks and ‘gossips’. And everyone thinks I’m perfectly fine now.
I remained with restrictions for the rest of my life. I have pain everyday. I will do recovery for the rest of my life.
But when I want to leave early off work becaue of excruciating back pain, there are people who go like ‘oh my back hurts too i slept in a weird position’
THAT’S NOT THE SAME PAIN! Wtf
It affected me a lot in the beginning. Now I try to just ‘ impose’ my condition. When i’m asked to ‘hurry’ or just carry heavy things, I have to protect myself by simply refusing what can hurt me. Nobody will try to protect you for your condition. If you don’t stand up for yourself, nobody will.
Apart from a few very close family members, nobody believes or even tries to imagine the pain and the struggle
Even my own mother says I’m faking or exagerating it sometimes because ‘after 2 years I should be perfectly fine’.
neverthemood2 karma2018-12-06 14:50:47 UTC
neverthemood1 karma2019-01-29 17:41:40 UTC
Is there anything that it is known for sure to prevent this type of disease? Because there are a lot of probabilities. However what people have found out in these years if research that can be a general truth?
Is this hereditary? If so, how can it be transmitted? Any rule? Parents to kids? Grandparents to kids? Great grand parents to kids? Any specific rule?
I heard some studies a while back that you could test your dna in advance and discover if you are exposed to somw diseases during life - if you have it in the genes. Can it apply in this case too?
Coming back to what was said above, are there any types of food that influence in a good or a bad way the development of this disease? Or a category of foods?
Anything you may answer to me would be appreciated
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