IamA mother of a 3-year-old child with a terminal illness called cystic fibrosis, AMA!
My Proof: This photo of us today An article I wrote about his diagnosis An article I wrote about reading about the history of his disease, with audio of me finding out my kid has a terminal illness (in video form)
Update: Sunday 11 a.m. - Gotta go live in the real world for a while, but I'll check in later tonight before closing this bad boy down. Thanks.
Update 7:30 pm: I'll be back to wrap this up in about an hour. if you take anything at all away from this convo, just wash your hands a lot, cover your mouth w/ crux of elbow when you cough and vaccinate yourself and your kids. Those simple things help people w/ chronic illness/ medically vulnerable a lot.
Lastly, my petition that seeks to halt runaway train drug pricing has 90,000 signatures+. I'm trying to get 100k, one for every person in the world with CF. This is it