MEGAPUPIL

main hardship was getting laid off/furloughed. At first i was just straight laid off, and if it was not for my CF clinics social workers I would not have been able to hold my employer accountable. Rent was terrifying.

After that, missing checkups/weigh-ins at the local hospital. Doing a CF wellness check over the phone is difficult, and relys heavily on "how you feel" which is far less empirical. and scary.

next was gettign up to snuff with the food deliveries.

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i could go one for ages.... theres been so many.

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I would say the worst of all of it tho. The isolation. I thank my postman from the window, I haven't hung out with friends in ages... i know most can relate to that. But while everyone else is isolating for their own reasons, I am doing it literally in fear of my life. and thats very challenging.

Discolouration in fingers and toes that are clubbed. That was the only odd one, that stood out. Like yellowing or darkening in the cuticles of clubbed digits.

Outside of that, cf and covid have the same damn symptoms. So it’s been rinse repeat of the same info we know by heart. “Different cough than usual” etc

Oh, and this is just from my experience, diet. I’ve had to change how I measure my creon. My metabolism is stagnant, due to not being active. So I find myself needing more creon, or I feel very unwell.

you're too sweet for an internet person! happy cake day, and chuck them quid in the pot for a pint at the winchester as this whole thing blows over

My fiancé to be here with me. I miss her so much.

That’s it. Literally. But if she’s not an option....

Maybe a proper mattress. I sleep on a glorified mattress topper and it’s killing my body even harder. I find myself 50/50 sleeping on the sofa or in my room thanks to that hogshit “bed”

I did a quiz the other day, and have played quite a bit of online poker with friends. Not to mention chatting with my fiancé, who is sadly stuck in the USA right now. But yea. I use vid chat as often as possible. It’s a real life saver