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LedZeppelin16028 karma

I have CF. turned 30 this year (thanks to a transplant) not sure what to ask but feel compelled to...

At what age do you think you'll let your Son decide on treatments for himself?

LedZeppelin16026 karma

Well with my situation my mother was very overprotective having lost a son to CF previously. In general I'm very trusting of doctors as I wouldn't be here without them but one thing that affected my life for the worst was having a feeding tube inserted when I was around 12. I needed it for my health but it was at the worst possible time as body image is at its highest through those teen years and as a result my internal illness now had an external sign that I wasn't normal, and everyone especially teens want to fit in so it made me withdraw from friends and activities for fear of pulling it. I think I was probably too young to say no at that point as I did need it but I wish it wasn't at that point and there was more discussion and help for dealing with it

I don't regret my transplant but it came at a time when I had accepted I wasn't going to live much longer and I was depressed a lot around that time so I only really did it for my family's sake which wasn't the best idea as it's taken me quite a few years to adjust to having a future.

So I guess taking charge of treatment isn't really the question more I think it would've been better if everyone was more open like the doctors having psychologists on-hand for dealing with the illness and me and my family being more open with each other

LedZeppelin16022 karma

Why did Apple remove Front Row? it was so useful