LedZeppelin1602
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LedZeppelin16026 karma
Well with my situation my mother was very overprotective having lost a son to CF previously. In general I'm very trusting of doctors as I wouldn't be here without them but one thing that affected my life for the worst was having a feeding tube inserted when I was around 12. I needed it for my health but it was at the worst possible time as body image is at its highest through those teen years and as a result my internal illness now had an external sign that I wasn't normal, and everyone especially teens want to fit in so it made me withdraw from friends and activities for fear of pulling it. I think I was probably too young to say no at that point as I did need it but I wish it wasn't at that point and there was more discussion and help for dealing with it
I don't regret my transplant but it came at a time when I had accepted I wasn't going to live much longer and I was depressed a lot around that time so I only really did it for my family's sake which wasn't the best idea as it's taken me quite a few years to adjust to having a future.
So I guess taking charge of treatment isn't really the question more I think it would've been better if everyone was more open like the doctors having psychologists on-hand for dealing with the illness and me and my family being more open with each other
LedZeppelin16028 karma
I have CF. turned 30 this year (thanks to a transplant) not sure what to ask but feel compelled to...
At what age do you think you'll let your Son decide on treatments for himself?
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