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I'm a 27 years old guy with albinism and you can AmA
Hi everyone.
After posting on r/mildlyinteresting, people wanted to know more about me and albinism (mostly about albinism I'm sure :D ) I'm here to answer all of your questions
And because we are on internet, this is the proof
Edit : Thank you for the silver
Edit 2 : Waaaw a big thank you for the platinum
Edit 3 : Double silver, gold and double platinum, guys thanks a lot, this is incredibleI'm sorry is I don't see your message, reddit notification system is not great and when I click next on the message list it's telling me there is no more messages
Edit 4 : And a third Platinum, you are the best guys.I'm still here if you want to ask questions, and if you want you can add me on kik it's the same username on Reddit
InlovewithLJS1964 karma
Hi...a 15 year old Indian girl with albinism here... I am not on Reddit but after seeing yourthread could not resist myself...I hope this isn't rude but what level of vision do you have? Like I have nystagmus but I can function nornally in my day to day life..except for seeing anything far away , I can see stuff normally.. Is there anything you, as a 27 year old would like to tell me? Tips? For personal and professional matters? Which country do you live in? And how is it there for you? Have you faced social trauma? I am actually lucky in that peopelhabe treated me very normally...all my teachers and fruends are super helpful about my nystagmus...but yeah, here and there, especially from the younger kids, I will get questipns liek Are you american/british/australian as I don't really have exactly white hair ...my hair is quite golden...I coukd, I think identify for someone from the nordic countries...except of course I don' t have thier killer features...Sorry for making this so long..its just exciting to actually be talking to someone who 'gets' it... P.S. what sunscreen do you use? P.P.S. I just saw some other questions on this tjread and I am so sorry you have to answer those...like who are these people and where do they come from?
Sorranne1426 karma
Hi, I'm glad you reached out.
My vision is basicaly the same as you, I can get around pretty easily as long as I don't have to read things, and if I do I just need to get closer.
I really don't know how it is in India, but here in France I had to learn ways to get my life easier like using my phone to read small texts or far away signs for exemple. Something else, just be your self, do not let people get to you with what they are saying, they are just ignorants, and what prople doesn't know create fear in them.
Growing up I had insults, prople looking at you even staring at you, you just have to get past this and you'll be fine. Sometimes the smartest will come to you and ask about you, why you are like this, most of the time it's sincere and just explain to them and it will be a pleasant experience for both of you.
Maybe it's a good thing to not have hairs as white as mine you'll get less attention.
If you are feeling at your place with your friends keep them with you as long as you can, they are one of the best things you can have.
I think I got you coverred, if you have any other question, do not hesitate and send me a DM and I'm so sorry to not answered you sooner
DrMeatpie29 karma
OP I recommend you reach out to this girl and be willing to answer some questions. It would be nice and possibly offer some closure.
Edit: Good man.
Sorranne26 karma
Thank you for the ping, her message got lost, I'm answering her right away
Sorranne3377 karma
A guy told me from across the street that the smurfs village was the other way. Probably because of my white hairs, but it was kind of stupid
revankillsmalak674 karma
Jesus Christ, imagine being so much of a dick that you actually open your mouth and say this to a person. Unbelievable
TopographicOceans518 karma
Really. Better to keep your mouth shut and let people think you’re stupid than to speak and prove it.
Scoob19781249 karma
How does it feel that you can break in French museums and kill a guy and never trigger any alarms or get caught on tape?
Lliesaa1186 karma
What do you find interesting about having albinism? Is there a trait you do like? Like, having white eyelashes.
Sorranne1880 karma
There is not much interesting things about being an albino, maybe the color of my eyes and my hairs, because let's be real, white hairs are cool.
Other than that, I have a super earing, but that's mostly it
shapednoise35 karma
Can you talk about your hearing? In what way is it ‘super’? Freq response? Dynamic response?
How did you find out it was super
Sorranne137 karma
I did some tests with a specialist, I can hear a larger wave spectrum interval and in my daily life I can hear things far away that my friends can't
Sorranne2084 karma
Icredible, I can adapt to the dark faster than someone with normal eyes and I don't need as much light as other people ot see in the dark areas
Insurancebastard116 karma
That is absolutely amazing! Any details on the physiology behind that!?
Sorranne362 karma
Basicaly, my eyes are transparent, this is the reason why, light gets in easily
shaker306127 karma
Does that mean they are extra sun sensitive too?
What about the rest of your skin, are you prone to sunburns?
Thanks for taking the questions like a champ! Super cool!!!
Sorranne256 karma
They are sensitive yes, and I am prone to sunburns, but with some sunscreen everything is just fine.
My pleasure
lipsticknude871 karma
Hey! I saw your post about your purple eyes and that’s pretty cool.
Does the rest of your family have albinism or is it only you? Also, do you know if you have children what the percentage is that they will have it too?
Thanks!
Sorranne760 karma
Nop I am the only one, and I have no idea if I can give the gene to my children
Onepopcornman655 karma
I imagine you're the rare person who can really truly dye their hair any color. Ever give that shot?
Have you built any cool Halloween costumes around your albinism etc?
Sorranne856 karma
Nop never, I love my hair color, and living in France, we don't have the Halloween culture like in the US
DarthNero294 karma
Purple hair, purple eyebrows, purple eyes. You'd look so cool. Then again, White hair looks super cool as well!
Sorranne317 karma
I think it's a little too purple, but yes white hairs looks cool, thank you
Sorranne369 karma
It depends, but a most of the time it's cool, sometimes people are affraid of me
Pepperoni_Dogfart100 karma
Honestly you just look like a normal dude but with white hair too early for your age. People are so weird.
zZDKVZz68 karma
Sorry to hear that, if I were around you at that age, I'd think you were cool af and would try my best to be your friend :(
fartfacepooper352 karma
are all of your parts white? I guess I'm asking if your asshole looks bleached or not?
4hourslater245 karma
Does albinism come with any internal side effects, as opposed to just external? Are there any traits/experiences that are common amongst albino people, but that the non-albino population might not consider or know about? Besides all of the stereotypes, I mean
Sorranne425 karma
Someone asked me if my blood was white on day, but no I have a normal body on the inside
DoubleYouOne183 karma
How do you feel about the Sun?
(I love the sun and sunshine, but can imagine you think different of it...)
Sorranne371 karma
Well the sun and I are not exactly friends, but with sunscreen it's all good
lemon_cello96 karma
As someone who hates the sticky feeling of sunscreen but wants to wear it more regularly, which is your favorite sunscreen (brand/type)? Best regards
Mecal00240 karma
Now when people ask me "why are you using that French sunscreen?" I'm going to tell them an albino guy recommended it to me; that'll shut them up.
nlofe60 karma
Not him but I discovered Canmake Mermaid Skin Gel sunscreen through /r/skincareaddiction and it's amazing.
I'm a 21-year-old dude but I want to take care of my skin and not have my friends always asking why my face is all greasy when I wear sunscreen every day. I know I sound like a shill but this is the only stuff that actually leaves no grease for me. You do have to get it on Amazon or eBay though, and it is a bit expensive, but it's worth it to me.
FilthySharp198 karma
You have purple eyes and you've posted them on the internet. If it hasn't happened, it will.
Sorranne173 karma
Maybe in another country, but in here girls tried their best to not talk to me
Sorranne243 karma
No I just have a poor hair genetic familly. I can, I don't like it but I can
Sorranne223 karma
I love Final Fantasy, so it feels great, I'm just sad to not be a magician tho
eternalouroborus67 karma
I mean, it's possible for you to be a grand wizard, but that requires you to be a part of the KKK...
Sorranne157 karma
In that case I don't need to hide my face, I already have the right color
eternalouroborus38 karma
Positive thinking. What's your favorite FF game? Also, do you play Kingdom Hearts?
AlbinoAlex118 karma
Howdy! I’m another person with albinism who has done several AMAs here over the years. Feels kinda weird being on the other end of these things :P Anyway, my questions:
What is your specific subtype of albinism?
Have you ever been to an albinism conference or meetup?
What do you do for a living? How does your vision affect that?
Do you drive?
How has albinism affected your love/dating life?
I have lots more, but should stop there. Looking forward to your responses :)
Sorranne31 karma
Hey man, that weird huh ?
I have no idea, I didn't even knew there was different types
Never, I don't see the point of those things anyway and I can't even say if there are meetings like that in France
For now I'm looking for a job of Designer, I wanted to do something I liked and also something I could do like any other and using computers was the perfect tool because of all the software there was obviously something I could use to help me see
No, even if I legally could I would not, it's too dangerous for me and for the other, I know how to drive though
A lot, and not in the good way, in France I'm clearly out of the standarts of "beauty"
Well I'm still here if you like :)
alejandrosalamandro115 karma
What is something about your condition that is rarely understood?
GinoMontana104 karma
How does your condition affect both your social and professional lives?
Sorranne322 karma
Well my love life is ... inexistant, but I have friends, I'm notshy or anything but I like to be alone, I think it's a side effect of all the insults I've got when I was young.
Professionally I'm having a lot of problems finding a job
tworedangels104 karma
I’m sure you’re amazingly unique. Did you post a pic of your face? I know we’d love to see you. Embrace your ‘weird’, we all have it, one way or another.
gdj11103 karma
The teenage years can be tough for everybody, but being different in any way can make you an easy target. How did other kids at school treat you? Also, is depression common among people with albinism?
Sorranne194 karma
They treated me pretty badly, but today I'm strong because of that.
I don't know any other albino, so I have no idea, I'm not depressed at all, life isn't easy but everything is fine for now
Edit : strong not string you idiot
gdj1137 karma
It's interesting you never tried seeking out other people with albinism. I have a disability and sought out some groups with similar people. Although, thinking back on it, it was mostly my parents pressuring me to do that. But it was still kinda nice being able to talk with people who you could relate to on that level.
Sorranne43 karma
It's a little by selfishness but I'm npt joining a group of people like me to prevent a group effect of people with the same difference, it would depressed me.
JaCoBaLlEn87 karma
Sup dude, not everybody likes soup. Do you? If so what's your favorite?
pettysoulgem35 karma
I think it's been long enough since that movie came out, thank god. My brother is albino (and 36) and he was called Powder by jerks ALL THE TIME when he was a kid/teen.
gingerbreadspicetea65 karma
Other than a need for SPF150, what are some of the downsides to having albinism?
Sorranne131 karma
Mostly the bad vision, and also the way people are looking at you for not being "normal"
Wildkarrde_55 karma
What's your normal clothing combo for going out in the summer?
Any health issues that come along with albinism?
Sorranne95 karma
A T-shirt, a short and a hat. I just use sunscreen, and I even go to the beach, I just need to not stay all the afternoon.
Bad vision comes along, but nothing else (hopefully)
themuffinmann8233 karma
What light spectrum do you see in? Can you see any vibrant colours?
verpin_zal31 karma
I always hear tell that albino individuals can see much better in darker conditions. Is this true or just an urban legend?
oppositetoup29 karma
Did you get bullied as child? I'm really fair haired and super white and i got bullied for being "albino". I'm just wondering if every child is horrible or if they are nicer to someone who actually has albinism
chefatwork24 karma
You've mentioned difficulty finding employment. Are you qualified in any particular fields and think you've been discriminated against, or do you think it's a lack of experience in any given area or profession?
coznefx40 karma
As the OP is a not a native English speaker, I don't think he understood the question. I also have albinism, and yes the carpets match the drapes.
Ammutse19 karma
Oh, bless, bahahah. I didn't even realize he wasn't a native speaker, he is doing quite well.
darkomen4220 karma
Drapes = head hair Carpet = pubes
And for the record, good on you man, you're a really good sport about a lot of stupid jokes and don't seem bothered by it. Despite what was probably a pretty rough childhood you seem to have a healthy dose of not caring too much what other people think about you, hang on to it. You seem like a neat guy, good luck on your career and with the ladies.
Sorranne22 karma
Ok got it ...
I've had a lot of time to learn not to care about what others are saying, so now I really don't care anymore and my life is so much easier.. Tahnks a lot mate, wish you best
Yhslaw119 karma
would a tan show up on your skin? Like from a tanning booth or laying in the sun?
Sorranne28 karma
Nop, even by staying in the sun the whole day, well I'd be red but no tan
Issianrenist18 karma
Have you ever wanted to dye your hair? Personally I would dye it in crazy colors, maybe purple to match the eyes.
Anyways, thanks for sharing, you are very handsome OP.
Sorranne17 karma
Never, I like my white hairs, I'm different enough to not dye my hairs like a rainbow :p
Thank you
krazyeyekilluh14 karma
I thought one of the results of albinism was pinkish eyes. Your eyes are clearly not pink (in fact, they are beautiful). Am I wrong about the pinkish eye association with albinism?
Sorranne16 karma
No they are more purple-ish than pink.
Maybe not, but albino's eyes are more likely to be red than pink
Breeze_from_Siberia11 karma
You look very handsome, and I'm sort of jealous of your hair (white is so cool). Anyone ever tell you they like your hair or eyes (purple is super cool too)?
Taser-Face8 karma
Without sunscreen, say like driving around on a sunny day, window down, t shirt on, casual exposure - do you burn or get red more rapidly than non albino folks? Or are you just always wearing sunscreen every single time you leave a building?
Sorranne15 karma
If I'm not staying a long time outside it will be ok. But yes I'm getting red really fast and could end up with a skin cancer
Langord8 karma
thoughts on this post? https://www.reddit.com/r/tipofmypenis/comments/aq6dzc/i_am_looking_for_albino_porn_is_this_a_thing/ nsfw
DootDotDittyOtt7 karma
I'm glad you did the AMA...and to think I got down voted for even suggesting it. Your eyes are truly beautiful. How rare is your particular condition...with the purple eyes and all?
Edit-also, are there any other health conditions you are susptable to other than poor vision and skin cancer?
Sorranne8 karma
Glad you liked it, don't mind them remember we are on the internet, you can't find logic everywhere. Albinism is pretty rare it's like 1/70.000, about the eyes I don't know.
I think it's enough for a lifetime, but I can have what every other human can have.
thank you
uber0ct0pus4 karma
Have you ever thought about dying your hair a crazy colour? Where most people would need a few harsh bleaching sessions to pre-lighten their hair ready for a bright shade, yours would take to it instantly!
OSUBeavBane4 karma
How do you compare to Powder? Do you have superpowers like him? Have you tried being struck by lightning and mysteriously vanishing into a rainbow shockwave?
Sorranne10 karma
Ok I Googled "Powder" and now I get it ^ Nah nothing like that sadly. And if I was struck be lightning I would not be here to answer
jimmycarr14 karma
Is there such a thing as people who have a fetish for albino people? Have you ever come across someone who has it, and if not would you want to?
Sorranne7 karma
I have no idea, but I never heard about it, and never came across it either.
I would want to, but just out of curiosity (am I a terrible human being ?)
TurkeyFisher1 karma
Did you ever watch the segment with the albino guy on Between The Lions as a kid? If you did, how did you feel about it?
Milligoon1 karma
How is your color vision? I understand there's a correlation between albinism and colorblindness.
nothankyounotnow1 karma
Are there still people who kill and eat albinos? I would very much suggest researching that particular issue.
LateNightBro1 karma
What’s your least favorite thing about being albino?
Also, what’s your favorite thing?
Sorranne2 karma
I would say my bad vision is my least favorite thing.
And my favorite is my super hearing
YangKanji1 karma
Damn, did you get Norted man? They did say Xehanort travels to the past.
You look dope as shit dude
Nashocheese1 karma
Are both your parents Albino, and if they are, how far back does it go?
pliskin420 karma
How was it working with Jim Carry? https://www.youtube.com/watch?v=kZpefzkw5_8
/s
In seriousness, how do you feel about how albinism is portrayed in the media?
pliskin421 karma
It is a bit here in the USA. The clip I posted above is one example (weired dude who scares people by telling them that he murdered his family).
Another example is the movie Powder: https://www.youtube.com/watch?v=dM1jktXwcSI whereby telekinetic powers are involved.
The albino monk in the da vinci code was a villian who was into self flagellation: https://www.youtube.com/watch?v=23M8WT_PS7E
The point I'm trying to make is that generally albinos get turned either into creepy villains, or if they are somewhat positively portrayed it is usually as the brunt of ridicule for being a freak. I imagine that could wear thin.
https://en.wikipedia.org/wiki/Albinism_in_popular_culture
ToeyGowd0 karma
What was it like meeting Melissa McCarthy and Sandra Bullock?
No but seriously that’s freaking cool
BarbBushsBeastlyBush2396 karma
In high school one of my classmates asked this question to the teacher, who responded by asking how he could possibly know that. So, what color are albino people’s nipples?
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