I'm a 27 years old guy with albinism and you can AmA

In high school one of my classmates asked this question to the teacher, who responded by asking how he could possibly know that. So, what color are albino people’s nipples?

They are pink

Hi...a 15 year old Indian girl with albinism here... I am not on Reddit but after seeing yourthread could not resist myself...I hope this isn't rude but what level of vision do you have? Like I have nystagmus but I can function nornally in my day to day life..except for seeing anything far away , I can see stuff normally.. Is there anything you, as a 27 year old would like to tell me? Tips? For personal and professional matters? Which country do you live in? And how is it there for you? Have you faced social trauma? I am actually lucky in that peopelhabe treated me very normally...all my teachers and fruends are super helpful about my nystagmus...but yeah, here and there, especially from the younger kids, I will get questipns liek Are you american/british/australian as I don't really have exactly white hair ...my hair is quite golden...I coukd, I think identify for someone from the nordic countries...except of course I don' t have thier killer features...Sorry for making this so long..its just exciting to actually be talking to someone who 'gets' it... P.S. what sunscreen do you use? P.P.S. I just saw some other questions on this tjread and I am so sorry you have to answer those...like who are these people and where do they come from?

Hi, I'm glad you reached out.

My vision is basicaly the same as you, I can get around pretty easily as long as I don't have to read things, and if I do I just need to get closer.

I really don't know how it is in India, but here in France I had to learn ways to get my life easier like using my phone to read small texts or far away signs for exemple. Something else, just be your self, do not let people get to you with what they are saying, they are just ignorants, and what prople doesn't know create fear in them.

Growing up I had insults, prople looking at you even staring at you, you just have to get past this and you'll be fine. Sometimes the smartest will come to you and ask about you, why you are like this, most of the time it's sincere and just explain to them and it will be a pleasant experience for both of you.

Maybe it's a good thing to not have hairs as white as mine you'll get less attention.

If you are feeling at your place with your friends keep them with you as long as you can, they are one of the best things you can have.

I think I got you coverred, if you have any other question, do not hesitate and send me a DM and I'm so sorry to not answered you sooner

I’m glad you responded😄👏🏼👏🏼

How could I not ? I wish I saw her message sooner tho

OP I recommend you reach out to this girl and be willing to answer some questions. It would be nice and possibly offer some closure.

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Edit: Good man.

/u/Sorranne

Thank you for the ping, her message got lost, I'm answering her right away

What was the weirdest comment you heard from a stranger?

A guy told me from across the street that the smurfs village was the other way. Probably because of my white hairs, but it was kind of stupid

Jesus Christ, imagine being so much of a dick that you actually open your mouth and say this to a person. Unbelievable

Really. Better to keep your mouth shut and let people think you’re stupid than to speak and prove it.

Thanks for the laugh

How does it feel that you can break in French museums and kill a guy and never trigger any alarms or get caught on tape?

Never thought of that

What do you find interesting about having albinism? Is there a trait you do like? Like, having white eyelashes.

There is not much interesting things about being an albino, maybe the color of my eyes and my hairs, because let's be real, white hairs are cool.

Other than that, I have a super earing, but that's mostly it

Do you have a super earring, or super hearing?

hearing, right ! Sorry

Can you talk about your hearing? In what way is it ‘super’? Freq response? Dynamic response?

How did you find out it was super

I did some tests with a specialist, I can hear a larger wave spectrum interval and in my daily life I can hear things far away that my friends can't

Have you ever felt the need to be evil?

I tried, but I'm not good at it

How’s your night vision?

Icredible, I can adapt to the dark faster than someone with normal eyes and I don't need as much light as other people ot see in the dark areas

That is absolutely amazing! Any details on the physiology behind that!?

Basicaly, my eyes are transparent, this is the reason why, light gets in easily

Does that mean they are extra sun sensitive too?

What about the rest of your skin, are you prone to sunburns?

Thanks for taking the questions like a champ! Super cool!!!

They are sensitive yes, and I am prone to sunburns, but with some sunscreen everything is just fine.

My pleasure

Have your night vision powers ever come in handy?

From time to time

Have you ever considered becoming a vigilante?

In my dreams

You totally should. You could call yourself the White Shadow.

Ahahah ! I love it

What about your night hearing?

Even better than the day one, in the dark all senses are on alert

Hey! I saw your post about your purple eyes and that’s pretty cool.

Does the rest of your family have albinism or is it only you? Also, do you know if you have children what the percentage is that they will have it too?

Thanks!

Nop I am the only one, and I have no idea if I can give the gene to my children

I imagine you're the rare person who can really truly dye their hair any color. Ever give that shot?

Have you built any cool Halloween costumes around your albinism etc?

Nop never, I love my hair color, and living in France, we don't have the Halloween culture like in the US

Purple hair, purple eyebrows, purple eyes. You'd look so cool. Then again, White hair looks super cool as well!

I think it's a little too purple, but yes white hairs looks cool, thank you

What was growing up with albinism like? Did kids tease you?

It was hard, and yeah every day

Sorry to hear that, hope life is easier for you now.

It depends, but a most of the time it's cool, sometimes people are affraid of me

Honestly you just look like a normal dude but with white hair too early for your age. People are so weird.

Of course they are, but I'm the weird one for them

Sorry to hear that, if I were around you at that age, I'd think you were cool af and would try my best to be your friend :(

Thanks

are all of your parts white? I guess I'm asking if your asshole looks bleached or not?

Yes they are

Is the head of your penis white? Asking the real questions.

More like Pink-ish

Has anyone pointed out that you have the Targaryen traits?

Except here, nop never

Does albinism come with any internal side effects, as opposed to just external? Are there any traits/experiences that are common amongst albino people, but that the non-albino population might not consider or know about? Besides all of the stereotypes, I mean

Someone asked me if my blood was white on day, but no I have a normal body on the inside

I know you had albinism, but are you all white now?

Yeah I am

How do you feel about the Sun?

(I love the sun and sunshine, but can imagine you think different of it...)

Well the sun and I are not exactly friends, but with sunscreen it's all good

As someone who hates the sticky feeling of sunscreen but wants to wear it more regularly, which is your favorite sunscreen (brand/type)? Best regards

This one for me at least

Now when people ask me "why are you using that French sunscreen?" I'm going to tell them an albino guy recommended it to me; that'll shut them up.

Probably yes

Not him but I discovered Canmake Mermaid Skin Gel sunscreen through /r/skincareaddiction and it's amazing.

I'm a 21-year-old dude but I want to take care of my skin and not have my friends always asking why my face is all greasy when I wear sunscreen every day. I know I sound like a shill but this is the only stuff that actually leaves no grease for me. You do have to get it on Amazon or eBay though, and it is a bit expensive, but it's worth it to me.

I'll try it, for science

What sunscreen do you use?

This one

is it more racist if you say the n-word?

Meh

Do you ever get fetishized?

Never, or I never knew

You have purple eyes and you've posted them on the internet. If it hasn't happened, it will.

So be it

OP missed out on scoring weird weeaboo girls in high school with those.

Maybe in another country, but in here girls tried their best to not talk to me

Do albinos peoples tend to be less hairy? Can you grow a beard?

No I just have a poor hair genetic familly. I can, I don't like it but I can

What's it like in Albania?

No idea

How does it feel to live in the shoes of a final fantasy character?

I love Final Fantasy, so it feels great, I'm just sad to not be a magician tho

I mean, it's possible for you to be a grand wizard, but that requires you to be a part of the KKK...

In that case I don't need to hide my face, I already have the right color

Positive thinking. What's your favorite FF game? Also, do you play Kingdom Hearts?

I love Final Fantasy VII, and no I don't play KH

have you tried to respec into illusion?

How so ?

3 more years and you’ll officially be a wizard!

Let's do it then

Howdy! I’m another person with albinism who has done several AMAs here over the years. Feels kinda weird being on the other end of these things :P Anyway, my questions:

• What is your specific subtype of albinism?

• Have you ever been to an albinism conference or meetup?

• What do you do for a living? How does your vision affect that?

• Do you drive?

• How has albinism affected your love/dating life?

I have lots more, but should stop there. Looking forward to your responses :)

Hey man, that weird huh ?

I have no idea, I didn't even knew there was different types

Never, I don't see the point of those things anyway and I can't even say if there are meetings like that in France

For now I'm looking for a job of Designer, I wanted to do something I liked and also something I could do like any other and using computers was the perfect tool because of all the software there was obviously something I could use to help me see

No, even if I legally could I would not, it's too dangerous for me and for the other, I know how to drive though

A lot, and not in the good way, in France I'm clearly out of the standarts of "beauty"

Well I'm still here if you like :)

What is something about your condition that is rarely understood?

The fact that I can't see well

I’m sure you’re amazingly unique. Did you post a pic of your face? I know we’d love to see you. Embrace your ‘weird’, we all have it, one way or another.

I have now, it's on the top of the page

How does your condition affect both your social and professional lives?

Well my love life is ... inexistant, but I have friends, I'm notshy or anything but I like to be alone, I think it's a side effect of all the insults I've got when I was young.

Professionally I'm having a lot of problems finding a job

The teenage years can be tough for everybody, but being different in any way can make you an easy target. How did other kids at school treat you? Also, is depression common among people with albinism?

They treated me pretty badly, but today I'm strong because of that.

I don't know any other albino, so I have no idea, I'm not depressed at all, life isn't easy but everything is fine for now

Edit : strong not string you idiot

It's interesting you never tried seeking out other people with albinism. I have a disability and sought out some groups with similar people. Although, thinking back on it, it was mostly my parents pressuring me to do that. But it was still kinda nice being able to talk with people who you could relate to on that level.

It's a little by selfishness but I'm npt joining a group of people like me to prevent a group effect of people with the same difference, it would depressed me.

do you have any tattoos? I bet color ones would be amazing.

None, I'm not sure if it would be good with my sensitive skin

Sup dude, not everybody likes soup. Do you? If so what's your favorite?

Of course, I like Tomato soup

Has anyone ever compared you to "Powder"?

Nop, but they are comparing their tan to mine

Powder is a movie about an albino guy

Yeah I Googled it after ... :D

I think it's been long enough since that movie came out, thank god. My brother is albino (and 36) and he was called Powder by jerks ALL THE TIME when he was a kid/teen.

Kids ...

Other than a need for SPF150, what are some of the downsides to having albinism?

Mostly the bad vision, and also the way people are looking at you for not being "normal"

Ah, are you the guy that posted with the violet eye?

Himself

What's your normal clothing combo for going out in the summer?

Any health issues that come along with albinism?

A T-shirt, a short and a hat. I just use sunscreen, and I even go to the beach, I just need to not stay all the afternoon.

Bad vision comes along, but nothing else (hopefully)

What light spectrum do you see in? Can you see any vibrant colours?

I can see all colors, I just don't see really well

I always hear tell that albino individuals can see much better in darker conditions. Is this true or just an urban legend?

It is true

Did you get bullied as child? I'm really fair haired and super white and i got bullied for being "albino". I'm just wondering if every child is horrible or if they are nicer to someone who actually has albinism

Of course, kids are the worst

You've mentioned difficulty finding employment. Are you qualified in any particular fields and think you've been discriminated against, or do you think it's a lack of experience in any given area or profession?

I think it's a little bit of both

Is the carpet the same as the drapes?

Not really no

Wack, thanks for answering my morbid curiosity.

As the OP is a not a native English speaker, I don't think he understood the question. I also have albinism, and yes the carpets match the drapes.

Oh, bless, bahahah. I didn't even realize he wasn't a native speaker, he is doing quite well.

And now I feel dumb ...

Someone can explain me please ?

Drapes = head hair Carpet = pubes

And for the record, good on you man, you're a really good sport about a lot of stupid jokes and don't seem bothered by it. Despite what was probably a pretty rough childhood you seem to have a healthy dose of not caring too much what other people think about you, hang on to it. You seem like a neat guy, good luck on your career and with the ladies.

Ok got it ...

I've had a lot of time to learn not to care about what others are saying, so now I really don't care anymore and my life is so much easier.. Tahnks a lot mate, wish you best

would a tan show up on your skin? Like from a tanning booth or laying in the sun?

Nop, even by staying in the sun the whole day, well I'd be red but no tan

Have you ever wanted to dye your hair? Personally I would dye it in crazy colors, maybe purple to match the eyes.

Anyways, thanks for sharing, you are very handsome OP.

Never, I like my white hairs, I'm different enough to not dye my hairs like a rainbow :p

Thank you

I thought one of the results of albinism was pinkish eyes. Your eyes are clearly not pink (in fact, they are beautiful). Am I wrong about the pinkish eye association with albinism?

No they are more purple-ish than pink.

Maybe not, but albino's eyes are more likely to be red than pink

You look very handsome, and I'm sort of jealous of your hair (white is so cool). Anyone ever tell you they like your hair or eyes (purple is super cool too)?

Thank you, I have a lot of compliments here, but in real life, never

Will yer bones make my penis bigger?

Probably not

Without sunscreen, say like driving around on a sunny day, window down, t shirt on, casual exposure - do you burn or get red more rapidly than non albino folks? Or are you just always wearing sunscreen every single time you leave a building?

If I'm not staying a long time outside it will be ok. But yes I'm getting red really fast and could end up with a skin cancer

thoughts on this post? https://www.reddit.com/r/tipofmypenis/comments/aq6dzc/i_am_looking_for_albino_porn_is_this_a_thing/ nsfw

It's a category like another one, who am I to judge

I'm glad you did the AMA...and to think I got down voted for even suggesting it. Your eyes are truly beautiful. How rare is your particular condition...with the purple eyes and all?

Edit-also, are there any other health conditions you are susptable to other than poor vision and skin cancer?

Glad you liked it, don't mind them remember we are on the internet, you can't find logic everywhere. Albinism is pretty rare it's like 1/70.000, about the eyes I don't know.

I think it's enough for a lifetime, but I can have what every other human can have.

thank you

How do you feel about the name Sylas?

Sounds cool

How do you compare to Powder? Do you have superpowers like him? Have you tried being struck by lightning and mysteriously vanishing into a rainbow shockwave?

Ok I Googled "Powder" and now I get it ^{^} Nah nothing like that sadly. And if I was struck be lightning I would not be here to answer

Is there such a thing as people who have a fetish for albino people? Have you ever come across someone who has it, and if not would you want to?

I have no idea, but I never heard about it, and never came across it either.

I would want to, but just out of curiosity (am I a terrible human being ?)

Have you ever thought about dying your hair a crazy colour? Where most people would need a few harsh bleaching sessions to pre-lighten their hair ready for a bright shade, yours would take to it instantly!

Never, I love my white hairs, and I'm proud of it

Do you own any firearms?

I live in France, it's a pain if I want one

Have you ever thought of dyeing your hair or getting contact lenses?

Contacts hurt my eyes pretty bad, and nop I love my hair color

Damn, did you get Norted man? They did say Xehanort travels to the past.

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You look dope as shit dude

Thank you

Are there still people who kill and eat albinos? I would very much suggest researching that particular issue.

Yeah probably in Africa

What’s your least favorite thing about being albino?

Also, what’s your favorite thing?

I would say my bad vision is my least favorite thing.

And my favorite is my super hearing

Did you ever watch the segment with the albino guy on Between The Lions as a kid? If you did, how did you feel about it?

I didn't

Are both your parents Albino, and if they are, how far back does it go?

No one in myt familly is albino, I check pretty far away

Have you met any other albinos? If so, what was that like?

Never

How is your color vision? I understand there's a correlation between albinism and colorblindness.

I can perfectly see the colors

What was it like meeting Melissa McCarthy and Sandra Bullock?

No but seriously that’s freaking cool

Thank you

How was it working with Jim Carry? https://www.youtube.com/watch?v=kZpefzkw5_8

/s

In seriousness, how do you feel about how albinism is portrayed in the media?

Considering it's not, I feel great. (in French medias at least)

It is a bit here in the USA. The clip I posted above is one example (weired dude who scares people by telling them that he murdered his family).

Another example is the movie Powder: https://www.youtube.com/watch?v=dM1jktXwcSI whereby telekinetic powers are involved.

The albino monk in the da vinci code was a villian who was into self flagellation: https://www.youtube.com/watch?v=23M8WT_PS7E

The point I'm trying to make is that generally albinos get turned either into creepy villains, or if they are somewhat positively portrayed it is usually as the brunt of ridicule for being a freak. I imagine that could wear thin.
https://en.wikipedia.org/wiki/Albinism_in_popular_culture

Looks like I'm going to have a happy life ... :D

Are you black?

Nop