I am severely disabled and bedridden at only 21. I have a myriad of different health problems caused by a traumatic brain injury. I live my life from this bed. Ask me anything!
Proof Edit: I’m adding a screenshot of my diagnoses listed on my mychart from Cleveland Clinic. These are the only ones that fit in the screenshot. Apparently I have to prove it to some people by showing them my medical records.
Day of pills, next to pill bottle for size
Some of my pill bottles. My boyfriend has the rest. He sorts my pills.
I used to be the epitome of health and was an athlete living my dreams, until my accident in 2014, at the age of 17.
After months of rehab, I recovered almost fully. But, I was left with progressing disabilities, which we were unaware of at the time. Over the years, I’ve gotten sicker and sicker. I’ve had many hospital stays. I became completely bedridden about 8 months ago. (another hospital picture)
My whole world consists of this room and doctor appointments. I spend most of the day alone, as my boyfriend works full-time. It’s incredibly boring and lonely. He is the only person I have interaction with. Some days, I just want to rip my hair out and scream. Thankfully, I spend most of the time asleep. My fatigue is so severe that I sleep ~16-20 hours a day. I’m going to be receiving a service dog to help me regain my life, which I’m beyond excited about, but it’ll probably be 2-3 years before I manage to raise all the funds. I’m looking forward to the day I can walk again with their aid (among the many other tasks the dog will do to help me).
I suffer from Myalgic Encephalomyelitis, POTS, Fibromyalgia, Gastroparesis, and cervical spondylosis. We are currently exploring the possibility of simple-partial seizures.
My occipital nerves are damaged, causing occipital neuralgia. It’s less common sister syndrome to trigeminal neuralgia. They are often considered the most painful condition known, and dubbed “suicide disease”, as 1/4 people with them commit suicide. I am being treated with gabapentin and baclofen, but my doctors will not allow me and further pain relief. I admit that I’d be one of the 1/4 if my family didn’t place me on “suicide watch” some days. If I could leave this bed and drive, I’d most likely self-medicate with heroin to make the pain stop on my pain flare days. I have no desire to become a drug addict, and I’m very glad I’ve never had the chance.
I also have PTSD from a severely abusive relationship. This included rape (in any way imaginable), torture, and other horrible things. I may answer questions about that as well, but most of it is blocked.
Ask me anything. Don’t hold back, I’m bored!!
Edit: My accident Many people want to know about my accident. I was kicked under the jaw by a horse, thrown back ten feet, and hit the back of my head on a split rail fence. I was seizing before I hit the ground. Paramedics spent half an hour trying to stabilize me (I kept seizing) before they could take me in. The fire chief left his car at the scene so he could come in the ambulance to help the paramedics. I was dying. They told everybody that, so that everyone were aware. They said that if I lived, I’d be comatose. There was a very slim chance of me waking up, but they said I’d be severely brain damaged. Yes, I had a helmet on. It saved my life.
I woke up later in the ICU. I didn’t have neurosurgery, like they expected. I had pretty good cognitive function. My only cognitive issues now are caused by brain fog from my other conditions.
Edit: Because people are asking, you can donate directly here by clicking on “help our next dog graduate” and using code AM-BE-AB in the additional information box. These donations are tax-deductible. I also have a gofundme, because for some reason, some people would prefer to donate there.
I want to make it very clear that I’m not asking for money. I don’t HAVE to raise a dime. They can do all the fundraising for me. It will just take much longer.
Edit: someone keeps posting “Bullsh*t” in the comments and linking an article written about me a year after the accident. I would just like to point out that it’s not BS, because... well, it’s me, lmao. Here is further proof. This is my facebook. Look at what I posted. Same name as the girl in the article, because that’s be me.
Edit: wow ok this blew up while I was asleep. I’m trying to answer as many questions and PMs as I can.
Thank you so much for your support, everyone.
Edit: no, I’m not paralyzed. I do have the ability to stand momentarily and some days can even walk up to ten feet before collapsing. I didn’t think this information magically made my illnesses fake, but I guess it does to the internet. The more you learn. I post my ups on social media, because people didn’t like when I posted my downs. I only linked my facebook to prove that my name is the same name from the article people were using to say I stole it from her (me). My reddit history should be more to your satisfaction if you want to see comments about being disabled.
Yes, I had a service dog. He was too small for mobility. He was for PTSD. He retired in 2016.
Edit: I’d like to clarify that the person naming all my drugs is wrong. I’m not sure why they tried to name them from a picture. I’m getting tired of trying to prove to people that I’m not spinning an elaborate lie spanning over four years, so I’m gonna stop answering questions. Thank you so much, everybody! Well, those of you who didn’t constantly try to “prove me wrong”.