IamA 23 Year Old Male with a rare condition called Spinal Muscular Atrophy and I survived 6 minutes of CPR without intubation!...and my life is really weird. AMA!
Hi. My name is Tyler and I'm 23. August is the month of SMA awareness and I thought I'd do an AMA with nothing off limits. This condition only affects roughly 2 million people worldwide. I've got a sense of humor and I can sit here for a WHILE. If this somehow blows up, I will absolutely respond to every single question. Do your worst, Reddit.
My Proof: I can't quite PROVE that my heart stopped for the specified 6 minutes but I can surely show ya some of my hospital metabolic results from the day it happened. The second link is a news story about a fundraiser I had a while ago (which the youtubers Drift0r and Boogie2988 REALLY helped with), the update story, and a picture of that particular hospital stay with the anonymous benefactor visiting me...he brought the current and previous Ms. Nebraska because he could. Literally no other reason than to cheer me up and I apologize for this section being so long. I'd be doing an utter disservice to everyone who helped if I didn't, regardless of if they ever see this.
Metabolic panel... And Ms. Nebraska(s): https://imgur.com/a/rEkEBoB
Drift0r video: https://www.youtube.com/watch?v=GuRj9ZthylU&t=
I know that AMAs are supposed to be very unique, but I also really hope that this doesn't come off as a bragging post. As I started to type I just started to realize more and more about how blessed I've been despite the circumstances. AMA!
Edit: probably best to have a better starting point. Like the name implies, Spinal Muscular Atrophy affects your muscles. Biologically much different, but in reality it's a slower paced ALS. All voluntary muscles slowly deteriorate over time. The most important one being your diaphragm.
Edit 2:I should've went to bed hours ago but this was so damn fun. Please keep the questions coming while I sleep because I promise I'm replying to EVERYTHING