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diQ__20 karma

Wow, dude, these feelings come irrelevant of your physical state with LSD. Been there both, on psychedelics and in hospital(completely different diagnosis ofc, but still, 4 hours in coma with doctors having no clue if I'd ever come out of it, stating a 50-50 chance to my parents). Could relate to your answers in this thread, best of luck with life and keep going strong. Feel free to pm me if you're having trouble with getting ANY supplements, I can probably help with it and it would be my pleasure. Never even heard of spinraza, but if you know of any generics available or upcoming, I'll probably be able and willing to help. Since this is a question thread but I'm not contributing on this matter, feel free to answer a question of your choice which you think is important to share, sounds fair on my part, since I've found this AmA really interesting. Respect.

diQ__8 karma

You too, think we could hook up IRL for some fun either now, or when you're healed! Regarding your question, first word that came to mind was "fairness", that might be me being biased after reading wiki on SMA and available treatments and their price and being a long time pharmaceutical industry insider. I just don't seem to comprehend placing a 125k per injection price tag for something which production costs are hardly even 4-figure, especially considering children\infants are the target group here. I definitely like and share your attitude towards people, these words in particular: "If you believe that nobody cares about you or won't miss you, you're wrong. A cashier you see semi occasionally will miss you. Even if life seems bleak as fuck, I'm here for you and I'm not exaggerating". I trust it to the point where I'd say that the most beloved, decent and reasonable people would still be there, no matter what happens to me. Funny how most healthy people miss this point so often, you sure are woke af, as someone already mentioned. Many times my life took great turns to a completely new direction, including the episode I've mentioned before, so I'd want to believe that I'd have the strength to stay positive and enjoy life to my abilities whatever happens to me, but I could only give a 99.99% probability on that, because you never know until you try... I do dream to try skydiving as well, and few years ago I actually tried motocross, being a speed lover since childhood I now know exactly what it means and the tremendous fun you get when you finally get to try/do it, I'm traveling to a few new countries each year now, contrary to what I did before my near death experience(maybe 1 new country in 5 years and living a groundhog day to day life) and this change is related to that experience you and I share, that is the main point I'm trying to make, pardon my bragging rights here. This makes me think that as of today, I'd probably miss my whole current life more than anything, but I still know and believe that I'd be able to adapt no matter what happens, that is the spiritual nature of my(our/human/soul) existence. Your story is a huge proof and a confidence boost to my current beliefs, huge kudos on this from me.

P.S. One interesting fact, that despite all of these similarities, unlike in your case, I've pushed myself to that experience completely with one's own hand, no higher powers, people or genetics could be blamed. Just my very own stupidity and ill decision making at that time, despite having all means and abilities to avoid it. Would still easily call it the basis of at least one of the most positive mindset progress that had happened in my entire life up till now. Cheers to all the loving souls and wish you never forget to enjoy the ride to its fullest!

diQ__2 karma

they cost less then 20$ for pill if you are not a braindead "make america great again" type of person. Quite easy to get it almost anywhere in the world now.