I am a woman with Multiple Sclerosis and for the last 6 years I have been in a drug study that has changed my life. The drug was recently approved by the FDA, and I want to share my personal experience with those who would like to know more about ...
I'm currently having a flare up and will be spending 8 hours a day at the hospital today, tomorrow, and Wednesday receiving an infusion of alemtuzumab. What better way to pass my time?
I was diagnosed with Relapsing-Remitting MS 11 years ago and the daily injections I was giving myself were no longer making a difference when my neurologist suggested a study for a drug called alemtuzumab. Six years later, and my disease has been totally reformed.
Here are some photos of me at the hospital, hopefully proving to you that everything is as I claim; now with a clearer photo of my IV bag! Ask me anything!
Edit #5: Done with my infusions! Please be advised that the staff at the infusion center said today that I tolerate alemtuzumab better than anyone else they've treated with it. I get a fever around hour 3 and I get really flushed (as you can see in the photo!), but it's really not a terrible experience for me. I don't want anyone to feel like I led them astray.
Edit #4: alright, I feel like this has been a pretty successful AMA. The comments and questions are starting to taper off, but I will continue to answer them as long as they come in. :)
Edit #3: I'm back in the infusion center for the day! I will be taking some benadryl in a couple hours, so I will probably take a nap at some point, but I will answer all of your questions when I'm available. :)
Edit: I'll be going to bed in a couple hours, but will answer any overnight questions when I'm at the hospital tomorrow. :) also, I want any of you to feel free to message me if you need someone to talk to about MS, even if you are not participating in the AMA. Whether you have it yourself, or know someone who has it, it's tough and sometimes you just need some perspective and someone to talk to.
Edit #2: I just took my prophylactic drug cocktail to prep myself for infusion day 2, and at least two of them will knock me the fuck out. Night guys! Keep the questions coming and I'll answer them in the morning. :)