Fellow girlie with MS here chiming in :) I was diagnosed with an extremely aggressive form of RRMS, borderline secondary progressive a year ago tomorrow at 24. My neuro thinks I've been sick for 10+ years. My exacerbation which led to my dx was Optic Neuritis and it was the worst my neurologists had ever seen. I've been through solumedrol, plasmapheresis, and IVIG.
To top off my hell of a year, I just found out yesterday I have Tysabri antibodies AND I'm positive for the JC virus so I have to stop the Tysabri, go back into the hospital and get plasmapheresis again to get all the Tysabri out of my system. I was hysterically crying as I LOVE it. It was only my third infusion but it's the best I've felt in years.
I'm going to my neuro Thursday and at my last visit, she previously mentioned Lemtrada. Seeing your post, I'm now very intrigued. I've tried avonex, copaxone, tysabri, tecfidera, and rebif. The side effects were absolute hell for me. I got welts so bad on the copaxone that I had to send pictures to the FDA. They were 24inches in diameter!
Anyway enough about me :), what are the worst side effects you've had compared to previous meds you've been on. I read about the cancer scares; how common is it?
Thanks for this iAMA and feel better! Well, as normal as one can feel with MS lol :)
nerdygirlie222 karma
Fellow girlie with MS here chiming in :) I was diagnosed with an extremely aggressive form of RRMS, borderline secondary progressive a year ago tomorrow at 24. My neuro thinks I've been sick for 10+ years. My exacerbation which led to my dx was Optic Neuritis and it was the worst my neurologists had ever seen. I've been through solumedrol, plasmapheresis, and IVIG.
To top off my hell of a year, I just found out yesterday I have Tysabri antibodies AND I'm positive for the JC virus so I have to stop the Tysabri, go back into the hospital and get plasmapheresis again to get all the Tysabri out of my system. I was hysterically crying as I LOVE it. It was only my third infusion but it's the best I've felt in years.
I'm going to my neuro Thursday and at my last visit, she previously mentioned Lemtrada. Seeing your post, I'm now very intrigued. I've tried avonex, copaxone, tysabri, tecfidera, and rebif. The side effects were absolute hell for me. I got welts so bad on the copaxone that I had to send pictures to the FDA. They were 24inches in diameter!
Anyway enough about me :), what are the worst side effects you've had compared to previous meds you've been on. I read about the cancer scares; how common is it?
Thanks for this iAMA and feel better! Well, as normal as one can feel with MS lol :)
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