I am the real Mr. Glass! I have brittle bone disorder, Osteogenesis Imperfecta, and have fractured around 250 times in my life. AMA
Hey there! My name is Joe, and I have a rare brittle bone disorder called Osteogenesis Imperfecta (OI) which causes my bones to fracture easily, and be deformed.
This is the same genetic disorder that Samuel L Jackson's character Elijah Price, has in Unbreakable and the upcoming Glass. Elijah Price had one of the least severe forms of OI called Type 1. I have one of the more severe called Type 3. The character was obviously not based on me, and most people (hehe) with OI are not psychopathic super villains, but the films have helped spread awareness in pop culture.
I estimate that I have had around 250 broken bones in my lifetime, though I don't really keep count.
OI is caused by mutations to collagen molecules in the body. As such it can also effect other aspects of your body such as skin, teeth, hearing, and even your heart. Most people that have OI experience the majority of their fractures before puberty when the body's bones are still developing.
My type of OI (Type 3) is considered severe/moderate which is why I have never walked and am around 3 feet tall. I also have low respiratory functions and I am partially deaf. I use an electric wheelchair to get around and hearing aids to hear.
Despite what many may consider disadvantages, I have always tried to live my life as fully as possible and attack each day like a honey badger!
You can lean more about OI by asking me questions here, or from the Osteogenesis Imperfecta Foundation, where I am on the Board of Directors. http://www.OIF.org/
Also, I did a similar AMA a few years ago here.