IamA Disabled Little Person who just moved into an apt of my own!!! Wooo! Let's have some fun. AMA!
My short bio: I did an AMA 2 or 3 years ago which made it to the front page, because we just had fun with it. I was answering for 2 solid days and don't let my photo fool you with the size of my brass cojones, I am actually a little person. Sorry no banana for scale. I am diagnosed technically with rheumatoid arthritis which screwed up my joints pretty badly for many years before biologics like Enbrel went mainstream. I am 34 and got "sick" at 3, so in 1986. I am not touchy about answering anything health related or my condition or the occasional inevitable "how big is your dick?" questions. Lets have fun.
Sorry about the quality of my photos, my phone is a potato.
https://imgur.com/a/Mc6p7 Short album of my apt and a hilarious shot of my with a stripper. I was laughing like a moron the entire time because of the awkwardness and ridiculousness of the situation, not because of her nakedness. The Strip club was actually super disappointing. Dark, very loud, most of it wasn't accessible, and the dancing was crap. I could dance better, and it crossed my mind actually getting up on stage. Ask for a ramp and there I am twerking my powerchair's ass off.
Now the problem why I moved on my own into an accessible apt was not only the accessibility which I never had before (I couldn't reach the sink, go outside on my own til I got this incredible powerchair a couple years ago, didn't have an accessible shower, or kitchen, etc) but also because of my parents, particularly my mother. A few years ago I started reading /r/raisedbynarcissists and after years of depression, isolation, tantrums, and a suicide attempt, I found that those stories read exactly like my life. So maybe the problem wasn't in me and I wasn't to blame. Next step was doing something about it. It took years of exercising my arms, anxiety chest pains, weed, months of bureaucracy, and fighting and loathing for me to find this place. Obviously I have a visiting aide, Deb, but the idea here is to do as much as I can on my own. Deb's a hoot though. I was afraid of getting someone with the outlook of a guard from Auschwitz. I was also lucky in that the installer guy agreed to make slight modifications to the apt for my safety, but I went balls deep with the expensive grab bars and touch sensitive Delta faucet (I'm sure you can imagine how much that cost). A few kind Redditors took pity and actually bought me a mechanical toothbrush and gummi bears. I can eat a pound of those when I'm stoned.
Now I will tell you a little bit about the apt. It isn't big, in fact it's quite small, the bedroom is about filled to the brim after the bed was installed. But it's 100% mine and to make it livable I have then, and now planned to make as much of it accessible or automatic as possible. They already have a remote control door which I actually was pleasantly surprised by, and motion sensors on trash and laundry rooms. But inside the apt I had ideas in my head too... Keep in mind I really can't modify the apt, nail things to walls or whatever, but they were kind enough to agree to install my mostly reasonable safety requests. For example I spent a lot of money on a touch sensor faucet. Sorry for the potato quality photo, but I cannot take good selfies with my tiny little Trex arms. I wanted to show the kitchen faucet here. Basically not only can I reach it (a first for me) but it's also very convenient in that you touch any metal part to turn it on/off. The soap dispense is motion sensitive too (though it leaves a lot to be desired as it sucks the soap back as much as it squirts out). The bathroom sink faucet will be motion sensitive and they installed safety for my toilet too https://i.imgur.com/SlWNY25.jpg and what I lovingly call my Hello Kitty seat https://i.imgur.com/rt0TMce.jpg The trashcans will be motion sensitive and will close because I don't want to be staring at rubbish all day. A very kind Redditor has purchased an Alexa for me which is incredible because not only will I have something smarter than a cat to talk to, I can also ask it to call 911 if I fell on my head and I don't even need one of those emergency buttons. As far as lighting goes, I don't have good ideas. I know I can't nail things to walls, and those stand alone lights piss me off. To me they're like for old people. My crazy idea was to RGB the entire place with hidden Alexa controlled lightstrips. For one I can stick these under bed and have the first ever RGB bed in history (eat your heart out, Corsair), behind couch under my PC table without damaging walls. The wirelessness will be convenient and they will provide light as well as color if I want. This feels like the way to go, but so far I haven't been able to choose a good lightstrip system, and I really don't know how many I will need. Probably at least 4 or 5 strips but I will come up with a plan once I have everything else under control.
Now for the medical part if anyone has questions. I have rheumatoid arthritis since I was 3 as I said, which is autoimmune meaning my immune system is attacking my joints. Unfortunately in Russia in 1986 there wasn't really any way to fight this, most of the meds were had to be self-purchased somewhere. I had Gold from Japan which my grandmother bought. Yes these were used to treat inflammation way back when. I stayed though drastically decreased, the amount or prednisone I take daily all this time. As you can imagine prednisone comes with horrible side effects. Cataract, blood pressure, stomach ulcer, head aches, etc. I used to retain more water than three pregnant women. In about 1999-2000 I started having compression spinal fractures about once or more a month for about 2 years because my body had finally had enough and the osteoporosis is one of the major prednisone side effects. I lost a ton of weight and could eat or even sit up for that matter. I was in pretty much the worst pain you can imagine. Depression set in hard and is still around. Somehow I willed myself to sit up, start eating, and excersising to the limited way I can. Then out of the blue in 2009 I had what was later to be found a mass in my throat so I could barely swallow and even had trouble breathing. Thankfully I found an amazing surgeon in Jefferson, Dr. Boon, who worked his magic and brought me out of it. Got all the nasty out but it took a nightmarish week of precautions, feeding tube, and scoping my throat and two surgeries (was so pretty inside they went in again just for the hell of it.)
I later said I had enough. I got a powerchair, and got the fuck out of that nightmarish hole while the getting was good. I was lucky enough to find an apt and a good visiting aide. My eventual dream is a van like in that album which is a conversion with a ramp so you can sit in the front in your powerchair and drive it. But alas these things are not cheap. I'd be 300 by the time I could afford one. http://imgur.com/gallery/Fq22A
Edited out my wishlist
Thanks for reading this wall of text.
My Proof: https://i.imgur.com/NUw5ONm.jpg