Backstory: When I was 10, I began getting hives until I was completely covered. The doctor diagnosed me with Chronic Urticaria and Angioedema. He told me it would be gone in 2-3 years. Not everyday is a bad day, but 99% of the mornings I at least wake up with them on my legs. There are many triggers and not many ways to make them go away.

Proof: If you don’t handle gross (Edit: mildly weird looking) too well, then click this with caution.

Edit: Thank you all so much for the wonderful feedback! A lot of great recommendations, ideas, compliments, and questions have come in tonight. I thought only a couple people would see this, but I just spent hours trying to answer every comment and having a blast! Not to mention I got gold! So many of you have really improved my outlook on my situation, and hopefully I can take a lot of these ideas with me and get something good to happen :) I’m so happy to have so many people participate. Xolair was a big thing to come up tonight, and I absolutely plan on trying this. Diets, home remedies, acupuncture, marijuana, and more will be looked in to! Someone mentioned that if I find big results with something, then I should do an update AMA, and that can be done! It’s currently 2:31am and I have class in the morning, so I will get to all my messages and any further comments tomorrow:) Thanks again to all of you! You helped a girl have a great amount of fun tonight!

Comments: 1026 • Responses: 85  • Date: 

meoka23681463 karma

Have you ever considered that you might just be a pink giraffe?

annshocko1571 karma

This is a huge development.. I can’t believe I have never considered this before... Maybe it’s like Animorphs, but I never fully get to my final form

kitikitish433 karma

What's for favorite meal for dinner?

annshocko564 karma

haha, thanks for this question~ i absolutely love hot wings!

SlopDaddy98 karma

I was just now wondering if spicy foods affect you - surprised to read you love hot wings. Are there foods that are sure-fire triggers for you?

Also, since it looks like you might be a gamer, should I get my 12 yo son Battlefront II for Christmas?

annshocko202 karma

I’ve never looked too deep into food causes. I know too hot of a sauce can cause my lips to swell a little. I also tried to cut out gluten because we thought I might have celiac disease, but multiple tests ruled that out. Also, I have been told to go on different diets, but I am extremely underweight for my body type, so I’m not really in the position to do that.

Also, not the biggest gamer, more of an appreciator of them! Was never able to get myself a counsel or a good enough PC haha. But, if you son is a fan of a series or star wars, then he’d probably enjoy it, but EA really screwed up with that game and there are many in game purchases. I’d look into that before making your decision :)

kasondrarose32 karma

Have you been tested for other types of food allergy?

annshocko88 karma

I did have some allergy testing, but I believe it was more for outside type stuff. I haven’t been able to afford doctor stuff, and that allergy test was weirdly like $3,500. Didn’t even tell us that until after they did it to me. Hopefully I can get a good specialist soon and try to really dig deep into what’s wrong

kasondrarose93 karma

Find out what exactly they tested you for. Soooooooo many food allergies can manifest as hives/eczema/skin rashes.

annshocko49 karma

Next step really seems to be allergy testing, so hopefully that works out :)

kasondrarose66 karma

Seriously, request a list of the allergens they already tested you for, that you spent $3500 to receive. Knowing exactly what they tested you for will help you pin other allergies down.

annshocko36 karma

This is a good idea! I know it was mainly trees and grasses and the like. I reacted to dust and some grasses

crud3-90 karma

Have you bothered to eat a healthy diet?

annshocko5 karma

I really do eat healthy, lots of fruits and vegetables. If anything, I might have too much sugar cause I love my candy lol. But, many diets I have been recommended mean taking foods out of my life, and due to being about 20 pounds underweight, it is hard for me to do.

fiddel_fabulous3 karma

Have you ever monitored your glucose response to food after you eat?

Get a glucose tester and use it to avoid high glucose response meals.

If you can keep your blood sugar low in theory your Autoimmune response should be low too.

also different foods for different genetics effects your response everyone is different so a singular diet wont produce the same results on diff people.

Fyi good luck.

annshocko1 karma

At the moment I’m having trouble remembering anything I’ve done with glucose, but I can certainly ask about this kind of stuff and try this out :) thanks!

wrrddd-7 karma

Have you tried eating organic only? I had skin problems (mainly eczema) my whole life until I switched and right before I switched I had the worst hives ever on my hands and forearms. I cut out milk, started eating organic meats and within a week or two they were almost gone. Started eating only organic foods from then on and haven't had any breakouts. The only time I break out is if I eat out a lot within a short period.

annshocko2 karma

It’s hard for me to go on a diet because I am super underweight. I could certainly look into this, but personally I don’t have the best budget right now to not buy what’s mainly on sale. Hopefully if I see anything organic on sale I can try to check it out, but at the moment I don’t know if food is even a real trigger for my hives.

berserker_bovine4 karma

Do/have hot wings, or other spicy foods, cause a reaction?

annshocko14 karma

I tend to stick to mild sauce, but I have gone too hot and my lips do get a tad swollen (too hot being pretty much regular old Hot or hotter haha, I’m not the best with hot foods but love them anyways)

choreezo329 karma

Considering how long you've been dealing with this, have you developed a tolerance for the pain/discomfort, or are you as sensitive as when it first began? Do you find yourself less bothered by other source of pain/discomfort as well? Would you say your are mentally hardier because of this?

Since winter started I've been thinking a lot about people who live in colder climates and how their tolerances come about.

annshocko342 karma

I would definitely have to say I have gotten better with dealing with the pain. I used to be really scared of them and would cry from how they felt. Nowadays it’s just second nature to feel like this. On bad days, it’s very hard for me to move though because of how irritated my skin can feel when it’s really bad. Also, ones cause by heat get very itchy, and you can never really get used to that specific feeling. But, I would say my pain tolerance has increased in other situations.

This winter has been odd however, because my condition seems to be worsening out of no where. I haven’t seen a doctor in a while because there was nothing else he could tell me, so I’m trying to get insurance so I can see someone again. But, it’s quite cold here, and I have to sleep in shorts every night to try and stay cooler so I’m not too covered in the morning.

IceburgSlimk111 karma

Going to the allergist in the morning for the same thing. I've doubled up on Allergra and Zantac every morning and night. When I break out, I lay down, calm my breathing, and try to stay cool. Everywhere I scratch or clothing rubs me, I break out.

I've had a few patches in my life but it got really bad a few months ago. I took a shower and my whole body broke out. My voice started getting raspy so I went to the ER. They gave me IV meds and I passed out. Hooked me to oxygen and I woke up. Now I have an Epipen.

The double meds at night and morning help. I've been doing better. They gave me Prednisone but that lowers your immune system over time. I'm pretty sure anxiety and lack of sleep play a huge part in the breakouts. They did an allergy test and I reacted to everything. But then they found out that the needle picks actually caused the reactions.

I wish you the best and if you're interested, I would love to communicate after the dr tomorrow and update you with my situation.

annshocko84 karma

Talking after your doctor visit would be wonderful! Please feel free to PM me, I would love to hear any developments! I’m sorry you had to go through that. I also don’t sleep as much as I probably should and my anxiety certainly doesn’t help either. I have so many things that trigger my hives that it’s hard to even go through one day lately without having at least one small batch of them. I hope you find out something great tomorrow :)

alphajuliusbravo45 karma

“... I’m trying to get insurance so I can see someone again...”

As an Australian is this is a really distressing thing to read, and my heart really goes out to you and anyone in a similar situation.

annshocko8 karma

I really do wish I lived somewhere with better healthcare, but sadly I’m doomed with thousand dollar bills to try and help myself out. I have to get a tooth pulled soon (unrelated to my disease) and i’m worried that it’s gonna cost a fortune. I’d love to love to Canada, which I practically live on the border, to try to help with these costs!

dragonquestazzy205 karma

How do you deal with being itchy all the time? Is it more annoying than anything?

annshocko219 karma

It’s really odd, but different triggers cause different hives. The ones caused by heat almost always itch, and those are the absolute worst. Unlike in the photos, those ones are very small and more 3-D, and itch like crazy. The other ones are mainly uncomfortable, and are a little itchy, but I’m sure I’ve just grown used to it.

dragonquestazzy38 karma

question for you : do you ever get hives that look like squiggly lines or are they always round? I used to get breakouts that looked like squiggly lines and I would only get them when I was under stress. They were raised and red. Usually on my back.

annshocko63 karma

They are usually in a round shape, but they can sometimes be in odd patterns. I’d relate it more to a cheetah’s spots. If you click the Imgur link, the photo of me pushing my hair back- you can see on my arm the kind I’m talking about. Also, I do as well get hives from stress (usually from school), and it’s always on my forehead. I like to say it’s because my brain is thinking too hard lol

Dark-Porkins22 karma

I fucking hate when im hot and get itchy. I feel so bad for you :(

annshocko18 karma

It’s the worst :,( But, as bad as the last 8 years have been, I’ve grown a lot stronger from it, and a tolerance has been built!

stepong-30 karma

I don't usually go for women, but you are a little cutie. <3

annshocko15 karma

Haha well thank you! I’m glad that someone could find a little bit of cuteness in me while I’m in that state :)

p00ki3l0uh00133 karma

You still know you're beautiful right?

annshocko68 karma

This extremely kind and wonderful for you to say :) Thank you !

Stranger__Thingies67 karma

9/10 would totally give soothing oatmeal massage <3 Chronic hives, asthma, hay fever here. Shit's ridiculous and I don't even get close to as bad as you get. Mine just show up on random occasion. I have cold urticaria too. How do you treat them?

annshocko49 karma

I have cold urticaria as well! I haven’t had that kind as much though, since I try to stay out of the cold for too long (i live in northern USA). When I was first diagnosed, I had to take 7 pills a day, and then Benadryl if necessary. I’ve since stopped taking all the pills, and usually just take Benadryl, but it doesn’t help as well as it used to. It usually just takes time, usually 2-3 days tops for bad cases to completely go away.

smileymn14 karma

Did you ever take Famotidine? I had urticaria for about two years and took that with Zyrtec everyday, was exhausted all the time, sleeping too much from the drowsy meds. I’m sorry you’re having to deal with it, hives really suck!

annshocko20 karma

I actually have not taken Famotidine, but I will certainly look into it. I used to take Zyrtec twice a day for about 2 years. What’s strange is that now whenever I take it, it causes me to break out in hives. It has happened the last two times I took Zyrtec, I hadn’t taken it since my routine taking it. Super afraid of medicine now lol. Also allergic to most pain medicines, I can only take tylenol.

KamiOfOldStone64 karma

Is there hope of it going away at some point?

annshocko119 karma

Sadly, we are unsure. I’m looking into seeing a doctor again, but there have been obstacles. My first doctor originally told me 2-3 years, and that was hard to deal with. I’ve heard of people having theirs for 20+ years, so hopefully mine either goes away soon or I find a way to control it better at least. I have anxiety issues, which doesn’t pair well with my hives. I can’t really do anything too crazy without completely breaking out. I just gave a presentation; woke up covered in hives, left the room even worse. Went on a date a couple years ago to the movies, left completely covered. Went on vacation, when I got home I broke out. It’s hard to do daily stuff, so yeah. TLDR; Not sure now, but hopefully

analyticalmess85 karma

I also have CIU. Have you checked out Xolair? I get a shot every 28 days. After the first two shots, I haven’t had any hives at all. I still take Zyrtec, Xantac, Allegra, and Claritin every day. I also smoke (medical marijuana) most nights if I do have a small breakout (normally knees and ankles). The high CBD and low THC strains make them go away.

Good luck! I feel your pain.

annshocko59 karma

I had someone else recommend this earlier, I hadn’t heard of it! This really does seem to be like a miracle drug and I would love to check it out and see if I can get it! Also, medical marijuana was just passed in my state, so I could possibly try to look into that as well :)

Sancho_Villa4 karma

Looking at all these responses, this Xolair may be the fix. Please do an update AMA after seeing your doctor. I've never seen so much sudden support for one specific solution.

annshocko4 karma

If I am able to get on this medication, then I would love to do an update!

callmecraycray50 karma

Do you ever have breathing problems?

I have been dealing with similar issues for the past year and am currently covered in hives but this time i had bad breathing problems.

Also I seem to be allergic to sunburn. If I get a sunburn, the itching is almost unbearable. Does this ever happen to you?

annshocko45 karma

I do have both of these problems! Sunburn is the worst, because you can’t itch it because it hurts so bad. I’ve had that happen on two occasions, both times I forgot to wear sunscreen and was in direct sun for wayyyy too long. Dumb on my part.

I have also had breathing problems for a very long time, but I have yet to find a direct cause. I have been tested for asthma multiple times, but they say I’m fine. I believe Angioedema does cause breathing problems though, because that is swelling on the inside. If I were you, I’d look into that or both of my diseases. If you will see a doctor, ask about them as well. I used to take medicine for it; Zyrtec, Zantac, and Albuterol. I went off of it because I needed blood work and it seemed like they were unnecessary. I hope your condition gets better soon :)

callmecraycray16 karma

So far, doctors have told me I have: Idiopathic Anaphylaxis, Crohn's Disease, Schogren's Diaease, Elhers Danslose Syndrome and a host of other auto-immune problems, but none of the treatments seem to work.

Mine thankfully is not as frequent as yours seems to be, and I hope you are able to find aome relief.

annshocko12 karma

My brother has Crohn’s disease, so I just wanted to say I really hope that gets better. He was diagnosed around when I was, and it was really hard seeing him go through that and surgery.

Thank you so much for your well wishes, and I hope your issues begin to clear up. Try to keep your head up through this :)

polarbearplunge37 karma

I used to have chronic hives, then I moved many states away and in about three years they were completely gone. (It looked most similar to your picture #3.) It wasn't diet or sun related, because I'd get them in the middle of the night and with completely different diets. Have you considered moving somewhere with a completely different climate for college?

annshocko32 karma

I’m currently in community college in my home state. I considered going out of state, but I don’t know how far I’d be able to travel due to anxiety stuff. I do have family in the southern and western USA, while I’m in northern/eastern. This is an idea I’ve never thought about, so I will try to look into it :) Thanks! And I’m glad this solution worked out for you

polarbearplunge3 karma

No worries, I think almost all hives cases are different, so what works for me may not work for you. Just wanted to point out it took years of a different climate for them to go away, so just going on vacation wouldn't be the same.

One more thing I forgot to mention in my post... To the extent the itching is a problem, I found a ton of relief with aloe vera. Way better than the steroid stuff!

annshocko7 karma

Aloe Vera sounds like a great idea! There’s this one sensitive skin lotion I like to use, but it’s name is slipping my mind right now.

swkingz2331 karma

Have you tried Xolair?

annshocko29 karma

I have only tried Zyrtec, Zantac, Albuterol, and Benadryl. I will try to look into this medicine. I have had multiple recommendations and am very thankful for them! Do you have any history with this medicine? How does it work for you?

swkingz2322 karma

Yeah I tried all of that stuff too. I also had heat related idiopathic urticaria and started Xolair about 2 years ago. Haven’t had a problem since. Get a shot ~ 2 months no hives, no problems!

Seriously look into this. I’ve never heard of it not working for someone!

annshocko15 karma

Thank you so much for this idea! I had heard of shots before to help this, but never knew the specific kind to try because it was just family friends giving me worn out info

ragtime_sam10 karma

It's seriously a wonder drug. Exorbitantly expensive if you don't have insurance, but they have a program to help people without insurance pay for it.

Seriously look into it OP. It has the potential to cure you like no other med does. I have an allergic disease called mastocytosis, and went from being essentially homebound to feeling 90% normal again.

annshocko6 karma

I’m so happy that it has worked for you! This is for sure something I plan on looking in to, and hopefully once I get insurance I can give it a shot :) (pun absolutely intended)

ragtime_sam8 karma

Lol. This is the website for financial assistance in case your insurance doesn't come through! https://www.genentech-access.com/patient/brands/xolair/patient-assistance-tool-page.html

Also the only downside of the drug is it takes 3-4 months to work, so keep that in mind if you do wind up pursuing it.

annshocko5 karma

Thank you so much for this!!!!

9943 karma

I have no question but I just wanted to say that I really hope you can try this and that it'll work out. I can't even imagine what a tremendous benefit it would be for you to be able to not have to worry about hives anymore, and I'm really glad it seems like you've found another avenue to pursue in treatment of the condition. I wish you the best of luck.

annshocko3 karma

You’re a wonderful person and I’m very thankful for your input! Thank you!

The_Reluctant_Hero27 karma

This may be a bit personal, but are you able to be intimate with anyone/have sex? If so, is it very uncomfortable for you?

annshocko61 karma

I haven’t even kissed anyone before, so this really isn’t a question I can answer haha

FroDogg20 karma

Wow! I always tried to find someone who has been dealing with the same thing as me. I have been lucky in the fact that I never get them above my neck though. I have been dealing with mine for about the last 9 years, however, mine has gone into remission several times throughout that time. You can see what mine looks like here: https://imgur.com/a/GlSw5

Do you wake up with them? I get them in on my feet when I wear shoes and socks and they get hot and itch all day long. Drives me crazy. Does your skin respond to stimuli? My son once smacked me on my bare back pretty hard and the next day I had one in almost the exact same print of his hand where he had smacked me. It's great to meet someone with the same condition as me. Doctors were never able to identify what caused it in me.

annshocko13 karma

I have never met anyone with anything similar to mine! This is both cool and sad! I’m sorry you have to experience this, but I’m glad that you are able to fight through it. About 99% of the time I wake up with them on my legs, and if I stick to one side all night, then also on my arm and cheek! Also, if someone were to slap me, I would probably swell up just like you did. It’s such a weird thing to live with for sure

AverageElb18 karma

I honestly don't see anything gross, but I'm guessing you have "bad days"? What are those like and how do you deal with them?

annshocko9 karma

The photos I posted were all from my pretty bad days. Those normally come about when I’m sick. The hive can feel so much different between a regular day and a bad day. On bad days, it can be very hard to move because of how much more sensitive they can get when they’re all over your body. Different triggers cause different hives. I typically just wait it out and take some Benadryl, so I sleep a lot of the day. Missed a lot of school from that

diptheria6 karma

I also didn't think you looked gross at all, I thought your spots were cool and that you look beautiful! It's like you are part leopard. It sucks they are so uncomfortable. I hope one of the many suggestions in this thread turns out to solve the issue for you - good luck!

annshocko10 karma

This is very kind of you! Many people have noted that it’s not as gross as I believe they are, which is relieving!

InspiredByKITTENS17 karma

Question as a veterinarian - why can't they just give you prednisone (or other steroid?) for as needed use? Does it just not work? Or would you be using it so much it would be a problem?

I ask because you mention you are underweight, so the appetite increase/weight gain wouldn't be an issue, it's dirt cheap, and that's my number 1 go-to, especially with financial issues, for the "random hives" dog. Horses, too. Just curious.

annshocko10 karma

Prednisone I have heard can weaken your immune system more the longer you take it, and I’m also a little worried about the weird side effects it can give you. I used to take a steroid in the beginning, but I really can’t remember what it was called. Also, I haven’t talked to any doctors about my condition in a while because it hasn’t been too bad, so no one has attempted to prescribe me anything

Hexxman00715 karma

Do you ever get sick of people telling you some insane quack theory as to why this happens and what supplement or holistic thing you have to do to solve it?

annshocko12 karma

Kinda lol, I’ve had a lot of super random “solutions” recommended over the years, and it’s a little rough explaining myself over and over again haha

Breakyourthumb12 karma

What kind of psychological things do you experience? How do people initially react?

I hope you know that you are absolutely stunning and beautiful! 💕

annshocko8 karma

I do have anxiety issues, but do not take medicine for my moms personal reasons. People often get worried when they see my hives, but once they know i’m okay then it’s not the biggest deal anymore. Thankfully I was never bullied due to hiding them from the public for so long, but nowadays I just don’t care as much, and no one has approached me about them!

Also, you are so very kind and sweet, and it makes me incredibly happy to hear you say such nice things :) Thank you so much :)

Mageminers11 karma

Have you ever been held back due to your hives? Like going out and doing what you want, or making new friends? Anything of the sort. Also, I hope things get better for you.

annshocko16 karma

School was hard for a while because I was afraid to show myself with them. By senior year I stopped caring and would only stay home if they were super bad. Dating has been especially hard, due to both my anxiety and the fact that anxiety causes them. So, I just try to steer clear of it entirely because I’m afraid of these new situations ending badly due to it. Some days I do have to stay in while my friends have fun cause I know I’ll get them, so it really does suck those sometimes

HomerNarr11 karma

Its not gross. You are not gross. Does it pain you?

annshocko6 karma

It is extremely uncomfortable, and sometimes itchy!

BMikasa8 karma

What percentage of the day do you not have hives? And the doctor said it would be gone in 2-3 years when you were ten. Looks like you're past that estimate now. Do doctors think you will still grow out of it one day?

annshocko10 karma

Lately, the hives have gotten worse. But, I normally wake up with them on my legs, and then sometimes on my arms or cheeks. Sometimes they’ll be on one side, probably indicating that’s the side I slept on. They’ll slowly go away during the day, and by 12 or so they’re usually gone. They’ll return at night before bed after wearing pants for too long. Sometimes I’ll get them at school from stress.

Also, my doctor was a total ass and super condescending to my mom and I. We stopped going to him after about 2 years, and haven’t really seen a doctor about it since cause they’ve been under control. But, now that it seems to be getting worse again out of no where, we are considering seeing a new doctor. So hopefully they have a new solution this time around!

fredthebaddie9 karma

Absolutely, definitely see a different doctor. But don't stop there; see 3. I've learned that with uncommon situations like these, getting a second (or more) opinion is worth the hassle.

Also get them to do allergy tests! If your previous doc didn't, that could literally be the missing piece of the puzzle.

annshocko4 karma

Many people here have recommended allergy testing, so that really does seem to be the next step in my hive journey. There is a doctor near me that my friend recommend, so I’m looking into seeing her soon! I also plan on meeting with the rude doctor again just to show him my current state and see if he has any current ideas.

exponentia7 karma

I was in a similar situation for a few months. Chronic hives with similar timing for flare ups. Doctor had me on several antihistamine and steroid cream. It kept getting worse. Turns out I developed a soy allergy. I was taking a prenatal vitamin at night that was mostly made if soy. I know everyone’s situations are different but thought I would share my story just in case.

annshocko2 karma

I’m super glad you were able to figure out what was wrong! I hope you are able to live a life without hives anymore :)

berserker_bovine7 karma

You said heat causes breakouts, do you live in a warm place?

annshocko12 karma

I live in very northern USA, so it’s summer for about a month. When it’s cold, I can’t use too many blankets or wear too much clothes. Just wearing pants for too long can cause them, which is pretty much by the end of everyday. In the summer and sun, I can’t be in the sun too long or else I’ll have really itchy hives. I also have fair skin and burn easily, and let me tell you- hives on a sunburn is a recipe for disaster. I once spent hours in the sun cause I was dumb, and actually had my sunburn swell up in the exact shape of my sunburn, no swelling where I was covered up. It was the worst lol

n1ywb7 karma

Have you considered any medical cannabis remedies? You could try CBD oil.

annshocko18 karma

Medical cannabis was recently brought into law in my state, and I have thought about it. I have smoked before and used pens, but I have no real data on whether or not it helps with my hives or not. My family is super cool with marijuana, so this could definitely be something to look in to

OctaVariuM86 karma

It might help with any inflammation, but I'm not sure if that's your problem or not. It helps with my Crohn's at least (although I only use it on really bad days). It's legal in my state too (MA) and the dispensary I go to is very knowledgeable, so I'm sure there's lots of resources out there to help find out if it's useful. I use a high CBD blend via oils that I ingest, FWIW.

annshocko3 karma

My brother has Crohn’s disease and it helps a lot for him as well. I’m glad you have been able to find help with your condition. Hopefully I can look more into this! Thanks!

OctaVariuM82 karma

I'm glad he finds some relief in it. Crohn's varies a lot from person to person, but it can be pretty painful and draining on the bad days. That being said naturally cannabis might not work for everyone, but I've been on a lot of high dose, high test meds over the years for this and at least so far cannabis has helped just as much as any of those.

Hopefully you find a way to cure or at least lessen your issues! You seem like you have a good head on your shoulders though, which accounts for a lot when it comes to medical stuff. People who freak out over every little thing tend to be sick more often in my experience.

annshocko3 karma

I believe my lightheartedness towards this comes from me having this from such a young age. It sucked growing up with, but it was easier to accept and be comfortable with. Hopefully I do find a solution soon, and many great people have had a lot of great advice tonight! Thanks for your advice :)

freelibrarian7 karma

Have you posted here seeking advice?

r/AskDocs

annshocko8 karma

I actually have not! This is an awesome recommendation, and I’ll certainly try that out once this AMA dies down in my notifications :) Thanks!

sabbyrose957 karma

Is is possible that your laundry soap is the problem?

annshocko7 karma

I have used the same detergent for a very long time. One time we switched and my hives went crazy the next day. We switched back immediately and they were like any other day. I’d have to say my current brand is fine, but it was a good idea to look out for :)

i_seediscontinuity6 karma

So I am late to the party but have you heard of Hashimoto's Disease? I'm not a doctor but your experience sounds slightly similar to mine.

I had chronic Urticaria and Angioedema for about 4 months before being diagnosed with Hashimoto's. My doctor originally thought I was allergic to something so I ended up at going to an Allergist. I never got the allergy test done (all those shots) instead I got some blood drawn. My allergist found antibodies associated to an autoimmune thyroid disease in my blood which a pretty clear link to chronic hives and angioedema. I then got into an endocrinologist and got put on thyroid meds and now my hives are gone! It was like a miracle, I woke up one morning and the hives were gone.

Also have you noticed any triggers to the angioedema? I found out that taking naproxen or ibuprofen would trigger it and so now I stay far away from those pain killers.

annshocko3 karma

Pain killers I found out very early on are horrible triggers, and basically turn me into a walking red marshmallow. Also, I do believe I have had thyroid problems tested and nothing came of it! But, I’m glad you found your solution!

omnichronos6 karma

I had hives or angioedema (most often lips) nearly every day for a year. The only trigger I noticed was pressure. So if I bit my lip accidentally it instantly swelled up, or once my arms did from helping a friend move after carrying boxes on them. Often my skin would swell somewhere without an obvious cause though. before my allergist found a combination of allergy medications that blocked the reaction. My allergist tried many drugs before discovering that cetirizine HCL or Zyrtec blocked the reaction. Have you been to an allergist to try lots of medications to see if anything helps? I would try everything there was until I found a cure.

annshocko6 karma

Sadly, I haven’t really been able to get to many doctors for this specific issue of mine. It’s just kinda been something I live with. I also have pressure problems with mine; it’s actually something called Dermographia if you haven’t heard of it. It’s pretty much if you apply a little bit of pressure it begins to swell, which seems pretty on par with what you described! I would get bored in class and draw little shapes on my arms hahaha. But, Zyrtec seems to have turned on me after being my daily medicine and actually causes hives, I really have no explanation for that

shewhomustbeobeyed14 karma

I have dermographia and tight clothes are the worst. I posted up a little higher about reacting to Benadryl, but I also had to stop taking Allegra also. I’m sure we all have our quirks, but I can’t take any medication on a daily basis. You may want to rotate your antihistamines. Also, many medications for acid reflux have antihistamines of a different type and I’ve had luck with them.

annshocko2 karma

I currently haven’t been on any daily medications, and I only take Benadryl if I have to because I hate the way it makes me feel. Also, tight clothes are the wooooorst

omnichronos2 karma

It's a difference of genetics. Some people have paradoxical effects from medications and they cause what they are supposedly alleviating. Due to a misunderstanding, I tried to wean myself from Zyrtec by going every other day, then every third day. My swelling returned with a vengeance and my doctor told me that I could go to perhaps 5 mg from 10 mg, but that I should always continue taking it daily or it might stop working for me. I've been on it 20 years now.

annshocko2 karma

I’ve been meaning to try and take Zyrtec again soon, to really see if it’s causing hives again. My mom is convinced it’s just a coincidence. But, I’d prefer to not have a bad day, but it’s for science!

iogurt5 karma

Have you ever seen the movie "Fat, Sick and nearly Dead"? Joe Cross (the filmmaker) had your exact condition and got rid of it by changing his diet. Not sure if yours might be caused by the same thing? You can watch it for free here: https://www.rebootwithjoe.com/watch-fat-sick-and-nearly-dead/

annshocko4 karma

I actually have this DVD sitting on my TV stand right now! I just am suuuuper lazy and haven’t wanted to sit down and watch it! It’s my moms coworkers DVD and she wants to back, but it’s on Netflix I believe, and you provided a link, so hopefully I can get to that soon!

Beelzeboof5 karma

Favourite Star Wars film?

annshocko5 karma

Return of the Jedi! (I actually haven’t seen all of the movies, but this is my favorite out of the ones I have seen!)

booobp5 karma

do you have to have a strict diet? Like cold foods in summer, hot in winter etc. My sister gets minor reactions from food depending on the weather.

annshocko2 karma

I really don’t eat too much tbh, but no real restrictions. I’m super picky haha, but many people have considered changing my eating habits!

Shadowlord12224 karma

What's your favorite movie for a rainy day? Also what's your go to comfort food?

annshocko3 karma

I really love The Rocky Horror Picture Show, 50 First Dates, or some goofy SyFy movie! I’m also a big fan of Cheez Its (go to snack) and Sherbet (go to comfort food)

ArmouredDuck3 karma

What was your opinion on the recent DC movie Justice League? Did you enjoy the comedy or did you find it out of place? Also what's your thoughts on their choice of casting Ezra Miller as The Flash?

annshocko2 karma

I have surprisingly had multiple movie questions, but they’ll all on movies I haven’t seen :,( I’ve really wanted to get into superhero movies, but it just hasn’t happened yet. Sorry! I really do appreciate the whimsical question though!

wayfe3 karma

Have you tried AIP?

annshocko7 karma

I have not, but just looked it up! Right now, it’s gonna be a little hard to be on a diet considering I’m about 20 pounds underweight. But, I will look into possibly slowly getting into this diet !

wayfe4 karma

It's not necessarily a weight loss diet (but can be). If you eat plenty of good carbs and good fats you shouldn't lose any weight.

Good luck!

annshocko3 karma

Thank you so much! Many people have told me about diets, but I have been too scared to try any. Hopefully I can start up over this winter break :)

iSikhEquanimity2 karma

Have you ever considered medically supervised water only fasting?

annshocko3 karma

I didn’t know this was a thing! Although, I have fasted in the past for a colonoscopy, and that really did suck. If I felt that good results would come from it, then I’d probably consider it.

Aturom2 karma

  1. Have you taken a genetics test in regards to allergies?
  2. What type of fabric irritates you the least?
  3. What is your blood type?

I hope you find some relief

annshocko3 karma

  1. No genetics tests have been taken, and I currently know of no one in my family having anything like what I have
  2. Different detergents irritate me, but I try to keep light clothing on. Also, I can’t wear long sleeves or knitted sweaters because it will cause them
  3. B+

--abadox--2 karma

What's your kink?

annshocko10 karma

Hives. I’m in a constant state of arousal. /s

smity2562 karma

Do you drink a lot of diet soft drinks?

annshocko3 karma

I was drinking a Coke a day when college started, but I started getting chest pains which stopped when I stopped drinking it.

Hydropos2 karma

Sorry if you've already been asked, but have you tried topical (skin-applied) antihistamines? I break out in hives sometimes (for no reason I can figure out) and by crushing a 25 mg diphenhydramine pill and adding a few drops of water I can make a paste which relieves it within minutes.

annshocko2 karma

I actually haven’t heard of any type of solution such as this. If it weren’t midnight I’d give it a try right now, but I don’t want to go rummaging through my medicine cupboard right now lol, but I will for sure try this sometime!

bklhms198759912 karma

Are your glasses Gucci? You’re beautiful btw! :)

annshocko3 karma

Yes they are! My mom sells glasses, so discounts yo! Also, thank you very very much :)

CompleteChaosPodcast2 karma

How are you?

annshocko3 karma

Currently, I have some hives, but I’ve had them this entire evening so it hasn’t been too big of a deal for me. Other than that I’m great! this experience has been wonderful!

I_Stink1 karma

Does sun tanning make them better or worse?

annshocko2 karma

I have very fair skin and burn quite easily. When I get sunburns, it swells up exactly where I get burnt, so I’m not sure if sun tanning would be the best. When it was tanning season for prom, I was too scared to try the tanning beds since I know heat is the main cause of my hives throughout the day, so I never went.

globaldu1 karma

Who's your Shag/Marry/Kill/Best Mate in Game of Thrones?

annshocko2 karma

I’m actually totally lame and still haven’t gotten to watching Game of Thrones :-/

chickenpeanuts243_881 karma

How are you feeling right now?

annshocko2 karma

Right now I’m a little overwhelmed by the traffic that this post brought! But, right now I just have some hives on my legs, lower back, and left cheek. I’m just chillin, answering questions, and watching Jurassic World :)

AIined1 karma

How and when were you diagnosed?

I've noticed random rashes that come and go all over. They'll itch, but nothing too bad (and I've been bitten on the legs by fleas before, so I know what a bad itch is) and then they'll just go away. Doesn't happen all too often either.

annshocko2 karma

I was diagnosed at the age of 10 in December 2007 at my local allergist and immunologist. I went in for the stomach flu, and after taking albuterol i completely broke out in hives. Turns out I can’t take albuterol with my conditions, and haven’t since that day.

ch3micalkid1 karma

are u on hydrozine?

annshocko2 karma

I’m currently not taking any medicine for it besides the occasional Benadryl