IAmA fifteen year old with aplastic anemia a getting chemo for an upcoming bone marrow transplant next week. Ama.
Hey there! Title pretty much says it all - I really have nothing better to do and the wifi here is dogshit so this is at least something for be to pass the time.
Background: I had liver failure in October of last year, less than a week after turning fifteen. Doctors are still unsure of the root cause of that, but after getting to the brink of bedding a liver transplant and turning around right as I was offered a liver, I made it out ok. Or so I thought. In subsequent weekly checkups my platelet count started to drop, and shortly after that my neutrophil and red blood cell counts. After my parents did some consulting of Facebook groups we were pointed in the direction of Children's Wisconsin. I had been at Texas Children's for the whole liver ordeal as we've lived there for the last ~5 years, so we rented an rv (the owners were kind enough to reimburse us when he filled them in!) and proceeded to drive across the country to Milwaukee.
My transplant was originally scheduled for April (I think? Been here way too fucking long) but it was right around when covid started becoming an issue here. They ended up having to freeze the bone marrow for transport, and when it was thawed it was determined there wasn't enough marrow and my transplant was delayed. I've been living at the Ronald McDonald house across the street ever since, which is a blessing to have but at the same time I'm sure you can picture a teenager cooped up with both parents in a two room "suite." Two days ago I was finally admitted for conditioning and I'm now on my second day of chemo. The transplant is scheduled for seven days from now, so here's hoping nothing else goes wrong.
Proof (let me know if more is needed, I don't have the MyChart login but I can try to get it from my parents)
It would mean a lot to me if you sign up to the bone marrow registry. All it takes is a cheek swab and you could save someone's life someday.
I'll probably answer questions here for a few hours at least, and maybe back tomorrow if that's a thing that's allowed. Not like I have anything else to do!