I have rare disease called duchenne muscular dystrophy.
Hello, I am Ivan, 25, from Rijeka, Croatia, born with very rare disease called duchenne muscular dystrophy (DMD). That is a genetic disorder where mutated genes interfere with production of proteins needed to form healthy muscles. Disease is progressive which means that every day every muscle in my body are going to be weaker and weaker. When I was younger i could walk, run like every other kid, but now I am using electric wheelchairs and can't even eat alone. Also at night I am using device for non invasive ventilation to help me breathe.
Anyway enough about my friend DMD, let me tell you something about me :) I live with my parents and my brother, who guess what, also have same disorder as I have but he's 4 years younger. I have bachelor's degree from economics, I am unemployed and I am training boccia for fun and competition (third in my country this year). That's paralympic sport where people with severe disabilities can participate but need to use special equipment and help from sport assistants (father in my case). Also I love technology, movies and almost all kind of pc games. I don't have much friends, I am kinda introvert, scared of water and insects, but very open minded and realistic person. Taboo doesn't exist for me and you can ask me anything.
Edit: I will answer on all of your questions, just be patient Edit 2: Whoah what the heck, I came here to do some chit chat but this is crazy, thank you guys all, feel free to ask me even more, just wait for my answer (I am writing all of this on virtual keyboard so I can't be Formula 1)