So this year Pfizer just started started human trials for a potential cure. I have been looking into this for some time since a friend's young boy is affected by this as well.
Also are you in contact with Cure Duchenne (https://www.cureduchenne.org/)?
Anyways best of luck to you man and just hang in there!!! New treatments show up all the time and hopefully in a few years we'll have something for your disorder.
gciochina58 karma
You probably already know but just in case, did you hear about this?
https://musculardystrophynews.com/2018/04/13/dmd-treatment-using-mini-dystrophin-gene-begins-clinicaltrial/
So this year Pfizer just started started human trials for a potential cure. I have been looking into this for some time since a friend's young boy is affected by this as well. Also are you in contact with Cure Duchenne (https://www.cureduchenne.org/)?
Anyways best of luck to you man and just hang in there!!! New treatments show up all the time and hopefully in a few years we'll have something for your disorder.
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