IamA IamA chronically ill young adult (19 years old) with TOF w/ pulmonary atresia, (yes, what Jimmy Kimmel's baby Billy has,) and several other disabilities! I've been in and out of the hospital since birth and had nine major surgeries,
I have loved answering your questions, but I think it's time to call it quits for the AMA. Thank you for all the support! My short bio: including 3 open heart. Ask me anything!: deleted the original thread due to mistakes I made, sorry! I figured people might be curious about what growing up being constantly hospitalized would be like. Especially after completing my first year of college, I realized this isn't really an experience people understand or are are comfortable with, so I figured I might as well shine a light on it! I also never thought enough people would know enough about TOF for it to be a conversation I would get to have, but due to it being a bit more in the public eye, I made this AMA. Note: I don't know a ton about my diseases from a medical perspective, more just what it feels like and what it is like spending so much of my childhood in a hospital.
My Proof: a picture of me showing off my heart surgery scar, with one of my canes: http://68.media.tumblr.com/fe077bb8f418f8637f8133a4f5e3be68/tumblr_oq4gx7uBGm1s5ytqno1_500.jpg A picture of me two years ago, age 17, recovering from my most recent open heart, (probably about a week after surgery):http://68.media.tumblr.com/bb0900ec129dd1885d980ffe9919ebbd/tumblr_nlr5fwTLsP1s5ytqno1_250.jpg picture of me with a nebulizer treatment as a toddler:http://68.media.tumblr.com/8107d7b43b5af979d4c33002f7e3a907/tumblr_nmzff9afl51s5ytqno1_250.jpg