IAMA (the) moms who's daughters medical marijuana license was not renewed despite it saving her life. We found a dr...on the other side of the country AMAA.

How does it help her?

It controls all of her seizures. We tried everything. Nothing worked and she was sent home to die 2 years ago. We took a chance on the oil and it worked! It also normalized her eeg

Are you staying at one of the legalized states right now?

I'm actually in Canada. It is legal for medicinal use federally. However my province came out with new guidelines and her prescribing dr (pediatric neurologist) could no longer sign. So now....we fly halfway across the country for a signature.

If you don't mind me asking, how old is your daughter? What kind of oil are you using for her? Do you always use the same kind or do you alternate between a few? I'm unfamiliar with your story so if you could give a little more background that'd be appreciated. Is she old enough to understand what she's taking or is it just "the magical stuff that makes me better when I take it"? I hope nothing but the best for her and you're family and sorry you had to go through such drastic measures for something so helpful.

She takes an oil made from nordle and one from Jack Herer. She doesnt have the mental capacity to understand that shes even getting meds for her seizures I don't think. She is 9 but severely disabled.

What was the supposed justification for not renewing the license?

Change in policy. He wanted her to continue to use it though..... it was a bit of a battle between him and I because policy didn't strictly prohibit it rather advised against under 25. I released all of the emails between him and I to the media after a while. He was not pleased, then again, neither was I so...

Are you worried that this will make it less likely other doctors will take on this case?

It was a nightmare trying to find a signing doctor. It won't happen in Alberta (where I am). No one would even look at her files. A rational Dr in Ontario agreed to at least go through her records. Once he reviewed them he agreed it was a no brainer. She needs the oil and will sign. We fly out on Monday v

I released all of the emails between him and I to the media after a while.

It was a nightmare trying to find a signing doctor. ... No one would even look at her files.

I can see why it would be difficult to have another doctor choose to correspond with you after you released the previous doctor's correspondence publicly.

It was the right thing to do even if it made my life more difficult. That's not even why though. The emails were not the main issue. ...more to back what I was saying because the hospital was saying I was lying. I had proof that I wasnt. Drs wont take on a ped cannabis patient. They may prescribe a long time patient but they wont take one on in this province.

My sister-in-law in Alberta is having this issue as well. My niece has Dravet's Syndrome. Meds rarely worked and caused more problems than they solved. While other Dravet's parents are finding success with marijuana, she can't get it. Luckily for her, she is about to turn 18 so they can get around that... glad you found a way to not have to wait so long! Having spent a few years in the house with her, I know what it is like...

The people at the 420 clinic may be able to help her. Has she even tried it,

Did you ask his permission before publishing correspondence?

No but I spoke with my step sister who is a lawyer. Emails aren't protected.

Perhaps not protected but would sever any trust in the relationship without discussing it first.

Well with the way the conversation went, the trust on my end was severed anyway. But I do understand what you are saying.

Thanks for the AMA. A few questions:

Would you mind sharing your daughter's precise diagnosis?

Was surgery a consideration for the intractable seizures?

Which drugs can you recall being tried in the past?

Best of luck with your daughter. Hope she does well.

She has ohtahara syndrome. My god we've tried phenobarbital, phenytoin (that caused acute liver failure), topirimite, sabril, ativan, keppra, valproic, carbamazepine, lamictal, fospheny, midazolam, diastat, ketamine, propofol...I know I'm forgetting some. Oh and keto and IVIg! Surgery was never an option unfortunately as they came from every area in her brain.

What is your favorite dinosaur?

It's always been triceratops. Probably because when I was a child I thought it waa named after a girl named Sarah....and Im a Sarah too.

Would you consider moving to a location where marijuana was legalized (or is it decriminalized) like Colorado or Washington in the US or are there other tradeoffs that make this not a viable option? Have you investigated other options within your area? I could imagine this would be a relatively easy thing to get elsewhere with the right contacts.

She's been using it for two years exclusively and legally. So I have met enough people that it would be fairly easy to get I just want her legal (quarterly or yearly signature). If I had to move, I would. Although I believe now we're good even if I have to fly down to Ontario every few months.

it is maddening that stuff like this is allowed to happen. marijuana is safer than so many other prescription drugs, yet you could likely find someone to prescribe any of that other shit without a problem.

i'm glad to hear that you've been able to sort this out. i can say that in that situation, i'd do anything to get what i need. i'd grow it. i'd find some way to get it prescribed to me instead of my child. i'd have no problem with breaking laws to get it either, though obviously some laws are much stricter and much more risky. no trying to smuggle it over from the US. :)

good luck to you and your family.

Thank you!

Are you using non-THC cannabid oil? How is it being administered?

She actually gets the thc. Cbd only caused myoclonic jerks for her but with the added thc we achieved seizure control.

Before your daughter was prescribed medical marijuana, what were your views about legalization of the drug recreationally and medically? And what are your views now?

I've always been pro legalization although never really fought for it per se. I just think that adults can choose what they feel is right for their body. Now that I am more aware of the benefits and how benign it really is as a recreational substance I find it absolutely bizarre that it is a criminal offence to enjoy a plant.

As to not get too political or turn this into a history lesson in short the reason pot is illegal is because of the hemp industry and how many other major cash crops it would put out of business (mostly logging, cotton, coal, and it would put a severe dent in the chemical industry as well)

Oh I understand why it's illegal. I just think it's complete bullshit to be honest.

God your English is fucking terrible. Your title should read "IAMA mom/mother whose child...." Is English your first language? If not where are you from? I haven't heard if your story so why does your daughter require pot?

Edit: pretty stoked this is getting so much hate :⁾

Edit2: I hope the down votes reach the thousands!

English is my first language. Quite frankly I don't know what happened in the title. Not enough coffee before braining perhaps? Really no need to be a colossal asshole. I guess things like that bothered me too before I finished puberty.

Since you're either young or behave that way, I'll give you a lesson. Read the entire description, including clicking the newslink I provided you arrogant twat.