IamA 18 yr old guy diagnosed 4 years ago with New daily persistent headache/ chronic migraine. AMA!
Hi! I am an 18 year old boy form the UK, and 4 years ago i developed a condition called New daily persistent headache. It is a very rare condition - estimated to be around 0.03 of the population.
I have been told that the symptoms of the condition vary for different people, which lead to allot of confusion in the early stages - we spent about a year trying to figure out what it was. I had more blood tests than i can count, an endoscopy, a CT scan and a bunch of other tests. Here and here are some links to research if you so please.
My condition means i constantly have what doctors call a background headache - a non stop headache. This background headache varies in severity, and when it gets bad or i am exposed to a trigger then i develop a migraine. I used to get migraines once a day but in the recent months they have been reduced to 2-3times a week. Unfortunately my condition is untreatable, but there are things which help - i take medicine to help me sleep and i have medicine i take when it gets really bad.
I have been a bit better over the past few months and people usually dont really ask in depth about my condition because they are uncomfortable - so i thought doing an AMA would be good for me as well as helping people understand these types of condition a bit better.