Comments: 1094 • Responses: 21  • Date: 

Jessica16081494 karma

Were there any repercussions for the surgeon who caused this?

You mention many people with the condition kill themselves: is this something you have or would consider?

How old are you?

ENS_Patient2370 karma

He's being investigated by the state medical board, and I am also going to sue him for medical malpractice, that process is ongoing, and I also want the police to investigate and put him in jail because he did all these surgeries on my sinuses against my will, intentionally against my will.

I was down on my luck at the time and he had the impression that I was a poor uneducated person who he could do whatever he wanted too and so he bypassed the informed consent process and did a bunch of surgeries against my will. [Edit: this is theoretical empathization of a person's motives, a person who intetionally does unnecessary surgery on people against their will, also I had insurance and did lots of research on in-network doctors].

He is a predator who is also a child-surgeon. What he did to me is the crime of "surgical battery" and it's a felony and he should serve jail time and lose his license. I am working with what limited energy I have so make sure 1) I get justice, 2) he takes responsibility for his actions, and 3) the public is safe.

I have considered killing myself, I think everyone has, how seriously people consider it is different for every person every time they do. I think about death a lot because this disease will probably kill me, if I can't cure it.

I am making peace with it and communicating to my friends and family the seriousness of this pathology, and how statistically a high number of ENS patients die within a few years of onset. I'm in my 30's.

zuuzuu81 karma

I am also going to sue him for medical malpractice

The statute of limitations for medical malpractice in Hawaii is 2 years. You've got about six weeks left. If you haven't filed suit already, you'd better move fast.

ENS_Patient45 karma

Thanks, we just got through a mandatory MICP process that took 10 months, and the statute of limitations is on hold during that period, so I have close to another year. But I'm not going to wait that long though.

TheNinjaInTheNorth17 karma

OP hasn't responded in over 8 hours, but maybe that's a factor of the time zone. I hope they haven't abandoned the thread, there is a lot of guidance here for them.
Listen, OP, let me speak plainly to you. A terrible thing happened to you. This thing that happened had caused you terrible physical suffering and also terrible emotional suffering. These are facts. You need, and deserve, treatment for the physical condition and also for your mental health, which was of course affected as well.
Are your current daily choices effective in getting you the treatment you need? It sounds like they are not. So, if you want to have effective treatment, change your daily choices. Peace and joy can be found again, even amid suffering, when you honestly accept your situation as it is and focus on seeking solutions.

ENS_Patient6 karma

Thanks man, I think thats good advice.

JazzyBison4 karma

What was the premise that got you in the OR? That is, the surgery was against your will, but I'm assuming he didn't kidnap you in the middle of the night. Why did you go to him in the first place?

ENS_Patient3 karma

An alar batten graft suegery using ear cartilage. It was a bait and switch maneuver where he agreed to the surgery I requested and then did other much more invasive and unnecessary surgeries.

dogfriend496 karma

You don't say much about why exactly you decided to have surgery. What were your original symptoms, and was the decision to undergo surgery mostly yours, or did a Doctor persuade you?
Thank you for this very interesting AMA.

ENS_Patient614 karma

I talked with three specialist about how to improve my breathing. I moved to Hawaii after that time, and decided to have the surgery I had planned for 5 years, called an alar batten graft.

So, I did a lot of research on possible physicians and based on all of Dr. O'Donnell's stated credentials online, much of which turned out to be false advertising, I decided to have surgery with him, and a co-surgeon Dr. Susan Tan. Who he said was there, even though I never met her, and who he later said was there to give him "moral support" but not do anything.

This surgery I requested was very straight-forward. I told him my previous diagnosis, and medical history, and requested the specific surgery I had planned for five years. He agreed and then, remarkably, he did different surgery cutting out huges pieces of my nose and sinuses giving me this disease.

The original condition was nasal valve collapse, and I used breathe-right strips to alleviate it. The entire surgery was my idea when I presented it to the surgeon, and he agreed. If he didn't agree I would have gone with someone else, but he agreed to the specific surgery and then he did different surgeries when I was sedated. It was incredible horror that I cannot adequately communicate to you.

Another persone intentionally amputating super-critical breathing organs inside of your body against your will is a horror I wish on no one. But the doctor that operated on me for hours does this. He is now being investigated by the state medical board but he is a very slithery guy so hopefully the medical board can catch him. They have more than enough evidence.

Cowajc0060 karma

Do you like grapes?

ENS_Patient68 karma

Yeah, generally purple ones more than green. And grapes are a pretty bomb side dish for a lot of things, also they go great in salads, which I don't think a lot of people do, but I recommend it.