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Comments: 447 • Responses: 55  • Date: 

valetdude206 karma

At what point did you decide not to go into competitive swimming?

Reddit needs these answers!

sawbuk296 karma

I believe 5th grade was the end of my swimming career :P

Absolute2014152 karma

A good friend of mine has this. I first noticed when he had one eyebrow missing. I assumed he passed out drunk somewhere and some friends got to him. He explained, we laughed. He's embraced it, and as a result has a wicked hat collection.

1) Have you played the cancer card yet? We used it on a bouncer once who wouldn't let him in a bar with a hat on. Bouncer felt terrible. We felt mildly ashamed.

2) Have you gone as Dr. Evil for Halloween yet? You don't officially have alopecia until you do.

3) Have you considered a hairless cat? It may also be used as an accessory to question 2.

Paranatural6 karma

These are the questions that deserve answers!

sawbuk24 karma

Sorry, saw this one earlier, forgot to get back! 1. I have played the cancer card. I have never told people I have cancer, but its pretty obvious when I go to a restaurant and people give me free food because they think I have cancer. I just play it cool, and take the free food :P 2. I have not :( I have gone as Mr.Clean the last 4 years in a row!! Although I could. I can do a pretty mean Dr. Evil impression 3. I have. It is my spirit animal :P

ihatemandymoore77 karma

The day you woke up completely hairless, did you find piles of hair?

sawbuk294 karma

I did, it was scattered on my pillows and bed.

RangersCrusader69 karma

What is the biggest downside? I'm guessing having no nose hair sucks. Also are there any positives? Like not having to shave.

sawbuk2141 karma

Biggest downsides? Nose hair, eyelashes, and eyebrows. They are all there to protect your eyes and nose from debris and particles and stuff. I enjoy being bald! I can wake up in the morning and be ready to go! Also, ladies love it xD

Supertilt66 karma

As a rapidly balding 25 year old, do the ladies actually love it?

EDIT :)

sawbuk2127 karma

Okay, so I'm in college, and I'm having a pretty decent time with ladies soooo hey man, its all about confidence. Women like confidence. And from what i've read, they realllly like confident bald guys xD

Wyojones80 karma

No crotch hair helps too I bet

sawbuk2138 karma

Its a gift from god, really :D

Gracie_Lou_Freebush50 karma

Can confirm. Am a lady and totally dig bald guys. Of course, I am married to a Wookie who is the hairiest man ever. Such is life.

sawbuk217 karma

Haha!!

Shtevenen66 karma

My nephew was diagnosed with this when he was 3. He still has some hair (that my sister will not shave) on his head, but doctors say eventually he will be totally hairless too.

She's scared that he will be bullied in school and is, in my opinion, way too protective regarding it. How did you make it through the grade school years?

sawbuk2188 karma

Sorry to hear about your nephew :( for me, elementary school and part of middle school was like a living hell. It's just hard for kids to understand. They will always be curious to different things! GIANT ADVICE : Do not let him wear a hat, wig, bandanna, etc.. to school. This is one of the biggest mistakes that I had made. People wanted to bully me more by coming up to me and flipping off my hat, running away with it, stuff like that. I don't ever want the same thing to happen to anybody. Its like a feeling of helplessness. I was trapped living under a hat even around relatively close family and my best friends, I was too scared to take off my hat around them. I didn't break this need for a hat until i was a sophomore in high school. Other than that, its pretty much just what will happen. Whether its bullying, or simply teasing, young people can't control their emotions and its hard for them. Love and Support. Continuous emotional support. Also, get him into wrestling xD nobody will mess with him once he learns how to beat peoples ass's. That's kinda what I did to get the bullying to stop, got really big, fast, and beat the shit out of someone who flipped off my hat :P

HibiscusJ63 karma

How many slip-n-slide championships have you won?

sawbuk2129 karma

Three regional championships, one national.

cvetan1328 karma

I've known a couple of people through my time at the uni gym who had the same condition as you.

They were both jacked as hell. Are you aware of a community of weightlifting alopecia-rocking men?

sawbuk227 karma

Bald guys do tend to be more masculine. I think that's all that it has to do with it ! I wouldn't say i'm jacked, but I'm build decently :P

Mikeydoes59 karma

Are there are other side effects to having AU?

sawbuk280 karma

I mean, along with loss of hair, it does effect my finger nails. It looks like someone took a pin and poked the tops of my finger nails lightly. I believe its called nail pitting or something

hicut30 karma

I actually think you really fucking suit having no hair. As an anxious person myself, I wanted you to know that. And also to remind you that, things that stand out to you like a sore thumb, aren't as noticeable to others and/or people don't care!

But my question is: whenever people discuss alopecia, the common 'cause' is stress/emotional trauma. Because you were 8, this is a difficult question to answer, but was that linked to your development?

sawbuk232 karma

Ahhh childhood. Im not sure if the timeline is accurate, but about a year before I lost my hair, my little brother and big sister were diagnosed with Cystic Fibrosis. I haven't even thought about this in the past. Could it have been the stress that my family had felt when my siblings were diagnosed ? Im not sure

UnknownLegend9727 karma

To start, I've had scarring alopecia since Feb 2014 and losing my hair has been a slow but bearable process, so I can't even fathom what it was like to lose all your hair in two days. I know it must've been different for you being 8 when you got alopecia, but how did you explain it to your friends? I've been very hesitant to. Initially I covered the bald patches with eyeliner but when they got bigger I had to grow my hair long, so still no one has really noticed it. I hate keeping secrets like this but I'm still uncomfortable sharing it. Do you have any advice on how I would go about doing so?

sawbuk238 karma

When I was 8, it was scary. Confusing. I couldn't stop asking myself why this condition had to happen to me. From the time I lost my hair, until sophomore year of high school, I wore a baseball cap. Every day. Which was a realllly bad idea. I was already struggling with the fact that I had no hair, then I had to worry about the fact that at any moment some curious little elementary school kid was gonna come rip off my hat. I'm not sure how old you are, but your friends should understand and support you! Don't be afraid of your friends, or anybody. Like the best thing I can tell you is to be open about it to your friends and family. The faster you can do that, the easier it will be ! Trust !

SikhyBanter10 karma

Anything you own like a champ no-one is gonna mock you for (they might in a jokey way but that's different). If you strut around like an absolute champion and don't give a shit, noone else will

sawbuk211 karma

Exactly! Its about confidence. That's all it is!

JLoff27 karma

How often do you hear Lex Luthor jokes?

sawbuk244 karma

That is actually a new one! Ill have to write that one down, thanks! if you want, call me Mr. Clean instead. That's what my entire university calls me lol

Hyfrith21 karma

My question is; how long did it take for you to accept your baldness? It must have been an awful shock. My gf struggled with it for a long long time.

I also have some experience with this disease myself. My girlfriend, aged 21, was diagnosed with Alopecia Totalis two years ago and was then diagnosed with Hodgkins Lymphoma a couple of months later. The curious thing there was that both Alopecia and Hodgkins are related to the autoimmune system, so I don't think it was a coincidence that she suffered them so close together.

She's recently gone into remission and has undergone a stem cell transplant to "replace" her immune system with one grown from donor cells in order to try and prevent her cancer from returning. Now one effect of this immune system replacement is that it's also cured her alopecia. Granted, it's a drastic step to destroy one's immune system JUST to cure alopecia (obviously the cancer was the focus here), but it does work.

Returning to my earlier point. My gf's doctor is currently doing research into the relationship between alopecia and lymphoma as alopecia could indicate an increased risk of developing lymphoma. So, not to scare you or anything, as there's currently barely any evidence to suggest a link, but I recommend you remember to undertake cancer screenings just as often as the average person should. Just to be sure.

sawbuk214 karma

It took until I was probably 17. Or however old I was as a sophomore. so like 9 years. I was writing about how I did get over it a couple comments down, it's too much to write here too :P That is crazy! Do you think it is a possibility that the Lymphoma was maybe the thing causing Alopecia ? Even tho the Alopecia was diagnosed first ? I am glad to hear that the treatment worked out!

Dr_dicksnorkeler17 karma

What is the most difficult thing you come across in your daily life as a side effect of AU?

sawbuk229 karma

Some of the difficulties that i come across on a regular basis are a runny ass nose. I'm not sure if its because I don't have nose hair, I don't know. I also get stuff in my eyes all the time. So i often times will have eye drops with me! During the summer, my head will often times get sun burnt, so I always have sunscreen with me :D

marcusucram16 karma

If somehow you were able to have hair grow back on only one area of your body, where would you wish you had it?

sawbuk225 karma

I would love to grow a nice thick beard!!

gstormcrow8016 karma

Do you get terrible swamp ass in the summer? Sorry to be so blunt, but I realize we may take for granted why we have hair in places where we tend to sweat most.

sawbuk212 karma

Chafing ? Yes, but not horrible. Id say just as normal as a person with hair!

windexcheese16 karma

Have you ever seen the movie "Powder"?

sawbuk27 karma

No I havent, sorry!

krankie7 karma

Well it's about a guy that looks like you but also he has magical lightning bolt powers. It's a good movie, just trust us.

sawbuk23 karma

Ill have to check it out :P

chintzy15 karma

Do you get sick of explaining it to people?

sawbuk231 karma

To be honest, it makes me feel about 100x better when I can talk about it.

fuckyoubullshitter13 karma

Is your big sis single?

Also have you heard of Matt Lucas?

sawbuk220 karma

I mean, that's her wedding LOL so no. Yes I have heard of Matt Lucas :P

Cooleosis13 karma

What do you do in the shower without any hair to wash?

sawbuk258 karma

Well, I wash my forhead. How far up? The world may never knowwww :P

Edvart11 karma

Have you considered tattooing eyebrows?

sawbuk220 karma

Neverrr!!!!

Aerron10 karma

It sometimes affects nails and rarely teeth, do you have any of those complications?

sawbuk213 karma

It does effect my finger nails. Its almost as if someone took a pin, and started poking the tops of my finger nails. I believe its called pitting of the nails.

JohnQuicyAdams10 karma

Eh, you look surprisingly normal. I thought no eye-lashes might look weird, but it doesn't seem that noticeable from the pics. Do you have any problems as a result of not having hair where you "ought" to?

sawbuk213 karma

Aha, thanks I guess ?? Most people don't even notice I don't have eyelashes. The only places I wish I could grow hair: Eyebrows, Eyelashes, Beard.

yohanfunk9 karma

Do you get spots? My spots generally occur around hairs / ingrowing hairs (the devil). If not, do you believe you are the next step in evolution?

sawbuk28 karma

What do you mean by spots ?

Wazouski919 karma

I think they mean black heads, zits, pimples etc... These are usually caused by plugged hair follicles.

sawbuk211 karma

yes. For some reason I have been growing some like peach fuzz on my face and it has been causing me to break out haha

PresentForAlyssa9 karma

What color was your hair before you lost it?

sawbuk210 karma

Ill post a picture for you guys!

labyrinthiner9 karma

Do you ever have people assume you have cancer?

sawbuk210 karma

All the time. Not so much anymore as I am starting to look more like a grown adult, and less of a boy.

VonBeegs8 karma

How loud are your farts?

sawbuk23 karma

On a good day? At least 120 decibels! xD

aquoad7 karma

what about things like the cilia inside the ear used for hearing? Always wondered about that.

sawbuk27 karma

You know, I'm not sure. I thought cilia was in your lungs ??? umm where do we find a doctor :D

snazzysmazzy7 karma

My sixth grade teacher had this condition, and he was an amazing guy who shared his experiences with the condition and taught me to be more accepting of people who look different. As a fellow 19 year old, i know relationships are a big focus for a lot of people. How have romantic interests played out for you? Do you think people your age really care if you don't have hair?

sawbuk28 karma

Good Question! Actually, I started dating this really REALLY pretty girl my sophomore year of high school, and she helped me with everything. I could not have asked for a better person, a better friend to help me get out of wearing a hat, and to help me just feel normal. Unfortunately, her and I split ways about a month ago, after a 3.5 year relationship due to college, and distance, etc.. For the most part, people are very accepting of me. I've noticed that if I am by myself, people may view me as kinda intimidating, I'm a pretty big dude too. I can see why haha! But if I'm with friends and out meeting new people its a lot easier. I have become pretty confident in myself. So I would say no, most people our age do not care!

bonesknowsx7 karma

Does the carpet match the drapes?

sawbuk24 karma

Quite possibly.

mofreaker6 karma

I dated a girl with your condition when I was 19. She wore fake eyelashes and wigs and drew her eyebrows on - her fingernails were also nonexistant, so she wore prosthetics of those as well. Honestly, in her full getup, she looked like a hot goth chick.

Have you considered using a wig/fake brows/lashes?

sawbuk29 karma

When I was younger, I considered getting a wig. I am glad I did not, because i couldn't ask for anything better than being bald right now haha!

mofreaker12 karma

Having shaved my head for years, I can fully confirm that chicks dig a smooth noggin.

sawbuk25 karma

Exactly xD

medauros5 karma

[deleted]

sawbuk216 karma

Hi! I don't believe they are shut. At random times, I will grow some hair, although it is very very thin and almost white. Its better described as peach fuzz :P Typically I can just pull it out without pain, or irritation to the area. I have noticed some places like where sideburns would be, do get dry. And I do not typically grow any hair in that area

WiseWordsFromBrett4 karma

When I google alopecia totalis, is that first picture that comes up you?

sawbuk29 karma

To be honest, I had to double check that one haha. But no it's not

buttery_shame_cave4 karma

Have you considered careers such as art modeling or bodybuilding?

Body building especially. Those guys drop bank and hours of of their day taking hair off. You'd have a natty advantage having all that free time for more gains.

sawbuk23 karma

If I had the motivation to become a bodybuilder, I would have been one by now :P

Bulldogmasterace3 karma

have you ever considered SMP (scalp micro pigmentation)? ( I dont mean it offensively, I had it done and its the best decision ever)

sawbuk25 karma

Im not sure what that is, sorry.

Herlock3 karma

It's hair tatoo I believe.

sawbuk210 karma

Im fine with the way I look! I look better without :D

a_guile3 karma

Have you ever considered tattooing an angry turtle on your back?

sawbuk27 karma

Not on my back, but for some reason I really wanted to get a turtle tattoo. LOL

satiricalspider3 karma

It's great that you're trying to spread awareness and I love your confidence!

If you could share one thing with people that don't know anything about this disease what would it be?

sawbuk24 karma

If I could share one thing with everybody about this disease. hmmmmmmmmmm I wish everybody in the world could identify people with alopecia, as people with alopecia. Its really not cool when people ask us if we have cancer. I was talking to a guy who's 4 year old daughter gets asked on a daily basis if she has cancer. Not cool not cool

NicktheBick3 karma

What's your favorite movie?

sawbuk26 karma

Happy Gilmore!

USDisFiatCurrency3 karma

wait. you're an alpaca?

sawbuk28 karma

Not funny. Sorry not sorry

rico161353 karma

Have you heard of the small clinical study using ruxolitinib? Is this an option for you? And would you even be interested?

sawbuk25 karma

Not sure if this would be beneficial for me, since I have had it for so long. I couldn't see myself with hair. If I randomly started growing hair again, I would probably shave it off.

Dizzy53 karma

Do your eyes bother you a lot? No eye lashes?

sawbuk27 karma

Yes. Over the summer when i'm working in the gravel pit it gets really bad.

MissionFever2 karma

Have you seen Arrested Development?

If so what do you think of the way Alopecia is portrayed in the character Stan Sitwell?

sawbuk25 karma

I have not seen Arrested Development! Tell me about it

annielovesbacon2 karma

Do people frequently assume you have cancer? A good friend of mine has alopecia, and a lot of people who don't know her well think she has cancer.

sawbuk25 karma

Yes they do. Not so much anymore as i'm starting to look like more of an adult. Yeah :( I don't like that very much. Its like bitch why would you even ask if i had cancer anyways hahaha

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JRod70717 karma

we demand pix of OP's balls for proof

sawbuk23 karma

Knew someone would say this :P