I am a Russian dwarf (little person?) living in USA. I have been diagnosed with arthritis when I was 3 (am 30 now), have had numerous spinal compression fractures, and a throat cyst and have had a very hard life with many other disabilities. IAmA ...
Hi Reddit. I am Crawlerz and I have not had a very interesting life (outside my numerous and painful disabilities all my life) but I posted some things to Reddit before and a couple of people suggested I do an AMA. Now I lived most of my life (that is to say ALL of my life) in a suffocatingly sheltered environment so I don't really know a anything about anything, so I decided to give it a shot on this subreddit where the atmosphere is a bit more casual.
A bit about me: I was born in Russia in 1983 and came to USA in early 1994. When I was 3 I had a fever spiking for a few weeks that didn't want to go down, and finally when I saw a doc I was told I had arthritis. Since then it's been going downhill nonstop. I stopped growing, in a couple of years I stopped walking (even on crutches) and then joint damage set in. Now I cannot straighten my legs and my hands and fingers look hideous and are weak. After I came here (to USA) I was given prilosec daily for my ulcer not to bleed (again) because of all the harsh crap I was taking for years and years (mainly prednisone). Noone told me prilosec should not be taken more than a couple of months and may lead to calcium deficiency... A couple of years later severe back pain and an XRAY showed I had a fracture. In a couple months it got unbearable and fractures because severely painful (I could actually hear the celery-like crunch inside me when it happened). Over a to year period I suffered over 2 dozen compression fractures and was unable to even sit up. I honestly do not know how I pulled through, but I did. It was a dark time for me. If I had the least bit of strength I would have suicided without a doubt. A couple years after I pulled through, I finished high school with honors (I was home schooled here and in Russia because leaving the house presents a lot of problems for me.) and a couple years after that I found I had trouble swallowing/breathing so went to an ENT and found a gigantic cyst in my throat that was closing off most of my passageways. It was the very first time I had surgery done (actually they had to go in twice because the first time they just hoped to drain it, but it turned out to be solid so they left it in and tried again 2 days later.) Major props to my surgeon - a very skilled man who stayed with me for 5 hours trough each of the 2 surgeries and did not mess up anything! (There were obvious problems because of my small stature, and my brittle bones/neck that they were afraid to manipulate so as not to leave me paralyzed and such). He accomplished everything and very well. He deserves a medal.
Since then I have "found" youtube and started doing commentaries more and more frequently. At first I was severely shy. I froze when it came time to speak into the mic or with anyone I wanted to play with online. I don't use the phone unless the house is on fire.
Why youtube, you may ask? Well because it gave me an outlet and it is a chance to have fun and poke a little humor here and there. It also sort of helped me come to terms (even if not completely) with my voice (of a 7yo girl).
As you can imagine, I did get a few disgusting comments about my voice at first, but having made a commentary about my shitty existence, people seem to have started taking me a wee bit more seriously. Since then I've gained a lot of subscribers and my channel is steadily but slowly growing (a incredible shot in the arm happened last summer when Robbaz the king of vikings commented on this video and the viking army stormed through my channel leaving nothing but broken chairs and spilled mead. I got an all time record of 250 subscribers that day!!! Since then I've gotten partnered (with a small-time very green shitty network unfortunately).... so let's see where we go from here. Also edit today Chaboyy commented on one of my videos - so my day is pretty much made.
proof if you want: http://imgur.com/p51CdXC
my WTF hands (especially my right one): http://imgur.com/xl4HoPd
ASK ME ANYTHING! I AM NOT TOUCHY AND IN FACT ENJOY A LITTLE SELF DEGRADING HUMOR BECAUSE IF YOU CAN'T LAUGH AT YOURSELF, YOU'RE AN ASSHOLE