UPDATE May 12, 2014 So I had two grand mal seizures in 2013, one in November and another on December 24th (christmas eve, no kidding), both were caused by not keeping myself in check, too much caffeine, and not taking my anti-seizure medication on time. I had a follow up MRI scheduled in March, so my team didn't think to rush anything given all the factors for what could bring a seizure on. The trip to the ER on December 24th lead to my license being suspended for 12 months. Fast Forward to March, I have my MRI, my follow up two weeks later indicates just a small amount of activity in part of what is left of the tumour, less than a pinky fingernail, probably just some active blood vessels. So I'm back on Temodar with another MRI in August, to see how this activity reacts. If it is effective, I continue on Temodar for up to 12 months and back to watching and waiting. If it isn't effective, I have more options, another surgery, radiation, another type of chemo (the kind that actually sucks).
It's crazy, but I'm so much more prepared for it this time. I sort of was expecting this to happen again, because for me it was always a matter of "WHEN" not "IF" the tumor is active again. I have a much better support system than I did the first time, and I have my wife (who is a saint) and my dogs, then of course my family and friends are still here for me too. I've been focussing on doing as much as I can for myself, living well and being happy. I'm working on some inspirational/motivational speaking through a national charity here in Canada, and I'm looking forward to telling my story to others. The main message is that we're all capable of moving forward from our challenges, it's just all about how to figure out what "forward" looks like to the individual. I'm just a normal guy who had this crazy thing happen to me, and I found the best way to move forward for me. I'm continuing to move forward with my career, and I keep on keeping on. I wake up, put my pants on one leg at a time and if I died tomorrow, I wouldn't have any regrets. I have love in my heart and I do my best to give out my best to everyone I meet, see, or talk to. I can't think of living any better than that.
holy crap I've spent so much time today replying to a lot of this thread. I didn't expect it to take off this way. I'm surprised at the amount of down voting, but it is the internet.
My Story: I had a seizure in January 2011, almost 7 months after I graduated university, and I was working 2 jobs to go back to school to start my career. Doctors found a growth in my head that caused the seizure and in March 2011 I had a partial resection of the growth and a couple weeks later I got the results as a form of brain cancer.
It's an oligodendroglioma, grade/stage III, with a 1p19q co-deletion which made it sensitive to an oral chemotherapy drug called temodar. I was on temodar for 12 months (April 2011 to March 2012). Now I'm back to "normal" and working two jobs and saving to go back to school in the Fall.
For the sake of not completely avoiding this question: many people keep asking me about using medical marijuana to cure my brain cancer.
I'm going back to school to become a teacher and that means I'm not going to comment on this particular issue. Bring it up, but don't expect a response. If this really bugs you....well, I guess it really bugs you.
I've answered a lot of questions so check out this really awesome table
Picture of me in a coma after my seizure (I was in a medically induced coma for 4 days): http://i.imgur.com/hpfyP.jpg
picture of my head after surgery: http://i.imgur.com/Necnn.jpg
For people wanting some kind of proof? http://i.imgur.com/hjniT.jpg