I am a disabled musician who has been releasing content centered around chronic pain, mental illness, drugs, and suicide. I'm trying to bring to your attention the politics surrounding pain right now! AMA!
Hi from /r/ChronicPain!
I've been releasing music/poetry centered around chronic pain, mental illness, drugs, and suicide for a year now.
I advocate for the humane treatment of chronic pain patients. I advocate for the responsible use of opioids in those who need them. And finally, I advocate for controversial treatment avenues such as kratom, medical marijuana/CBD, ketamine infusions, and psychedelics.
In December I delivered a speech/slam poem about the spike in chronic pain patient suicides as a direct result of changing governmental regulations.
I am a lot less proud of the rest of my SoundCloud in comparison, but I've put out roughly 3 hours of music about this type of thing over the last year.
In chronological order (this kinda feels like ambulance chasing but I guess I already put my name, face, and jewfro on this post so MIGHT AS WELL):
Recordings mostly from prior to my condition worsening, when I could still play bass: Messin' With The Dressin'.
After a year and a half of not being able to play anything and I started to really focus on making "cripple Folk" music about chronic pain, mental illness, and suicide: Suicide Music.
And the latest stuff: Dorm Room Demos
Andrew Kolodny (who has a background in addiction medicine) is heading an organization called PROP, or the Physicians for Responsible Opioid Prescription. This organization seeks to effectively funnel legitimate chronic pain patients into the addiction medicine umbrella. He stands to gain millions if his organization successfully treats all pain patients as addicts and forces them into addiction medicine clinics.
Andrew Kolodny and Physicians for Responsible Opioid Prescribing - PROP (mostly addiction specialists with little experience treating pain with opioids) petitioned the FDA in 2012 to change opioid manufacturing guidelines for patients with non-cancer pain, asking FDA to limit dosing to 100 MED and limit treatment to 90 days. FDA denied this request in 2013 due to a lack of scientific evidence to support limiting usage or dosage and no evidence to suggest cancer pain is different from non-cancer pain.
CDC published the 2016 opioid death report which falsely claimed pain patients were addicted and dying in massive numbers even though historically pain patients are rarely addicted or involved in opioid-related deaths.
This is made more complex due to the rise of fentanyl analog drugs coming from china which have been pressed into fake Xanax, OxyContin, and similar street pills, as well as the all too well known heroin fentanyl epidemic which has been making headlines for years.
CDC contracted with members from the anti-drug lobbying group PROP to help draft CDC guidelines for opioid prescriptions written by primary care physicians, even though CDC and PROP knew that illicitly manufactured fentanyl and heroin was the cause of the crisis.
Sources (admittedly biased towards chronic pain patients):
CDC Guidelines were implemented by the states as rule rather than guidelines as originally intended, forcing pain patients off their medication or to a lower, non-therapeutic dosage. This was done in spite of CDC having no prescription regulatory power and FDA already telling PROP there is no scientific evidence to suggest these limitations are necessary or useful.
In 2018, CDC finally issued a correction for the 2016 opioid death report admitting that the majority of the deaths were from illicit fentanyl and heroin, not legal prescription pain pills. CDC and National Institute on Drug Abuse (NIDA) concede pain patients are almost never involved in opioid-related deaths. According to SAMHSA 2016 and similar studies the addiction rate for pain patients is less than 1%.
Additional source (again, biased towards pain patients): https://www.clinicalpainadvisor.com/opioid-addiction/the-issues-with-the-cdc-guidelines-on-opioids-for-chronic-pain/article/524976/.
Dr. Thomas Kline released a report on medium.com detailing 37 chronic pain patients who detailed their struggles online and to loves ones and decided to end their lives after being cut off and forced to taper from their much needed medications
Thomas Kline has been extremely interactive on Twitter, taking polls and hearing our side of the story. This is a stark contrast to how @SupportPROP and Andrew Kolodny have operated their social media accounts. I could pull a ton of examples, but I think it's best for you all to draw your own conclusions.
I don't make any money on my music, but I want this issue to be more well known.
On Twitter people use the hashtags "SuicideDueToPain" and "OpioidHysteria".
The 3rd Don't Punish Pain Rallies are taking place on the 29th of this month. This might be a good way to grab some attention. The Rallies are national and the Facebook groups are gaining traction. Still, until people see this issue it's not going to change.
It probably won't change anyway.
Opioids, pain medications in general, and the politics surrounding pain are some of the most faceted issues I've ever researched. The factors leading up to the current climate surrounding pain and opioids specifically are so unbelievably complex I can't even fit it in a single Reddit post. I'm going to piss some people off, it's inevitable, especially when talking about an issue as complex as opioids in America. This is an issue deeply rooted in racism, politics, money, and large corporations such as Purdue Pharmaceuticals.
I'm sure many are going to draw a lot of your own conclusions. Some of you may call my mental health, medical history, and work ethic into question, or even outright accuse me of being a drug addict. This is pretty much par for the course since I've started speaking out about these issues. I personally don't care what you think of me as an individual, as long as you all are forced to see this issue for what it is. We are being punished for the actions of others. Addiction is a medical condition, but chronic pain patients should not be treated as addicts by default.
So Reddit, AMA!
Verification <- (mods please tell me I can remove that awful picture.)