I'm Milan, I’m 22 years old and I live with a disease called Duchenne Muscular Dystrophy (similarities with ALS) and have slowly lost a lot of my physical abilities throughout the years. I am also an aspiring YouTuber. AMA!
Hey everyone, I was born with Duchenne Muscular and have had to overcome many challenges. Most people don't feel comfortable asking about disabilities even though they might be curious and just assume things. My goal is to change that mentality. I figured doing this will reach people.
Some background about me:
- I lost the ability to walk about 13 years ago.
- Really have no arm strength. Just enough hand and wrist strength to control my electric wheelchair and use a computer mouse and use a PS4 controller.
- I use Non-invasive ventilation which is using a ventilator to take deeper breathes using a mouthpiece during the day as needed and a mask at night
- Recently started a YouTube channel about different adaptions in my life: https://www.youtube.com/channel/UC03YK9H5ygpPpW4QkQg3_ew
I will answer any question so please ask me anything at all! Hopefully, you'll learn something new!
Here's proof: https://imgur.com/gallery/NRTnzYc
If you want to follow along with my life, my Twitter and Instagram are both @patelasaur
Edit: I’ll be back replying later tonight. I'll get to everyone. I didn't expect to get this big of response so Thank You. I'm enjoying this.