IamA chronically disabled man at 28; I have Ehlers Danlos Syndrome. AMA!
My short bio: Hi. This is my first IAmA post, so please excuse if I don't quite get it right. I am a 28 year old disabled man with chronic diseases. I have Ehlers-Danlos Syndrome; a degenerative connective tissue disorder which has progressed such that I have developed Fibromyalgia, Chronic Fatigue Syndrome, Irritable Bowl Syndrome, and more. I've been diagnosed as Clinically Depressed and I take mood stabilizing medication, as well as high strength pain killers and preventative medication for severe migraines. I have regular dislocations (daily), I have brittle bones and extremely weak muscles. I can't walk unaided, and even with a cane I can manage getting around within a building and little more than that. I sleep around 12-14 hours a day and cannot look after myself. It is quite a soul crushing way to live as with my condition being degenerative I was quite able bodied a mere 5 years ago. My condition is deteriorating, and it will likely cause my death, as my heart is affected like any other muscle. I don't expect to live to see 40. Obviously this is difficult to live with, but I find talking makes it easier. I also like to know I can help people understand what it's like to live as a disabled person. So with that I say, ask me anything.
My Proof: I'm not really sure what counts as "proof" for this. Here's a YouTube video I made a while ago where I mention my condition if this helps - https://www.youtube.com/watch?v=tZomUMrz368
Edit - I will come back daily to check the thread and respond, if I haven't responded please be patient; I'm not ignoring you.