Mattpilf

Have you ever considered entering a Drag Contest as Tina? I'm pretty sure you'd win.

Also not OP, but http://www.ednf.org/

There's a good amount of stuff online.

Hey, not OP, but got the same shit, though not as bad. Lots of people seem to develop issues in their mid 20s. I used to be a long distance runner until 23, but was told I could never run long again. Once you're an adult your body slows down collagen production, and basically you don't heal as well. Its not just lack of excercise, as even with a strong body it can occur.(I could squat well over my bodyweight multiple times, and still couldn't walk a mile) excercise does help but it takes a long time to build up strength with EDS. Things escalated quickly for me, and others too.

Best advice, see a physical therapist to help you get an exercise program going you can do at home or gym. Make sure they know your hypermobility , no high weight low rep stuff. Best get on top of it quickly, its likely only gonna get worse from here for a while. Focus on strength and balance. Also keep your weight at a healthy level. Being overweight just makes everything harder.

Please delete your duplicated post. I know it was an accident, but there are a lot of them.

It can happen when you are trying to sleep, and you aren't really paralyzed in all cases. My partner suffer from sleep paralysis episodes and his body has serious shivering motion, so it's obvious to me when it happens. You aren't fully aware in much sleep paralysis so it can end up feeling like a nightmare since you don't have the same type of reasoning and calmness youd have normally.