IamA 34 year old woman diagnosed with a rare Chiari Brain Malformation. I just found out I need major brain surgery. AMA!
I am a 34 year old woman from Pennsylvania. I teach in the Early Childhood field of education. Prior to this diagnosis, I was leading a rather normal life. A Chiari Malformation is when the cerebellar tonsils of the brain are preventing the brain/spinal fluid from properly circulating. This has caused three areas of fluid to collect on my spine (syrinxes) which is extremely painful. The surgery I need to correct this (ASAP I am told) entails the opening of the back of my skull, the scraping or removal of bone to enlarge the area and what appropriate action needed to either move or remove the tonsils.
I am pretty much poopin' my pants with fear. AMA!!!