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I am a 15 year old shriner's patient who has had 2 C1-C2 fusions and has multiple severe mental health conditions.
Those are some x-rays from after the first surgery of me in a halo vest.
I had to have the C1-C2 fusion redone after the titanium cable snapped.
The C1-C2s were done with illiac crest bone, so now I have a cool V on my back, and a scar on my neck, along with scars in my hair and close to my hairline from the halo pins. I will upload pictures of all the scars if this gets enough attention.
I also have Autism Spectrum Disorder, diagnosed late at 13.
Along with Depersonalization Disorder which happened after bad drug experiences and panic attacks well I was stressed out over the surgeries.
I also have some sociopathic tendencies and possible Dissociative Identiy Disorder.
I currently build computers as a job and hobby, along with play many board games and video games, and watch many movies. I also like comics.
Questica14 karma
That is really hard. I really loved Reservoir Dogs, but 12 Angry Men had amazing direction too. I loved both there small settings. Oldeuboi also ranks pretty high with me. Psycho is also really really good. So is a Clockwork Orange. I don't know whether to answer the movie I most enjoyed or the actual best directed/acted/produced movie I can think of.
ThatGuyGetsIt4 karma
I'd posted this separately but it was removed because it wasn't a question :
This isn't a question so much as a general comment. The Shriner's are my go to charity to support. Without them I wouldn't be walking properly today as I was severely pigeon-toed as a child. Being that my family was extremely poor my mom couldn't afford proper treatment.
Shriner's childrens hospital took care of me, though. I don't have any vivid memories of that but my mom assures me that I had metal braces akin to Forest Gump.
Good to hear of someone else that they're taking care of.
I really want to become a freemason but their prerequisite of believing in a higher power disqualifies me.
Questica4 karma
Please please, keep supporting them, I was thinking about putting something in the post about donating to them, they just recently had a bunch of cutbacks and they really need it right now.
jeff_albertson_redux2 karma
Heh, funny, those are my favourite movies, too...and I'm more than three times your age :). Best of luck to you! Oh yeah, didn't really like Clockwork Orange though, it seems a bit too arranged to me anyways :).
ThatGuyGetsIt2 karma
Man, I recently posted in a thread about tipping using Mr. Pink's dialogue about the topic and got downvoted! Can you believe that shit? That is a pretty infallable list of movies, though. I was hoping you'd drop some more obscure titles. To that end... are there some more obscure movies that you might not consider favorites but still recommend?
Questica1 karma
More obscure? Confession Of Murder (2012) is something I watched recently that I thought was really good, reminded me a lot of oldeuboi. I know I like lots of other obscure movies but I don't seem to be able to name them. Does The Departed count as obscure? Or eternal sunshine of the spotless mind?
WHY_YOU_NO_BEEP_BOOP12 karma
I'm not sure how to eloquently or correctly word this so I apologize if it comes off as offensive. What was your worst or scariest sociopathic, DPD, & DID episodes? Also I am an IT as well! Keep up the hard work & get some good certs! there's good money to be made!
Questica11 karma
I had a really bad hallucinatory panic attack when I was at BC Children's Hospital.
Questica7 karma
Well I was playing the first game in the S.T.A.L.K.E.R. series when I started to see it in pastel/crayon, I started hearing music that wasn't there and whenever I would try to think back I would see a white flash. I started to see myself in the third person swaying on the bed, elastically past what was physically possible, some other minor stuff and then I snapped out of it and ran crying into my mother's arms.
WHY_YOU_NO_BEEP_BOOP5 karma
That's intense I couldn't imagine that. You're one tough kid! You have my respect.
Questica5 karma
Thanks. That bad drug experience is what caused the DPD. It also made me really really depressed for awhile. It was hard to recover from.
Trisomic2 karma
Recreational or pharmaceutical drug? Which one, if you don't mind my asking?
Questica1 karma
Recreational. Weed. I stopped because well, it gave me hallucinatory panic attacks.
gesundsbleiber5 karma
I'm 16, doing an extended project qualification based on DPD and the misinterpretation of DPD with Schizophrenia. Just saying, after researching the disorder I'm really sorry you have to put up with it and think you are really brave to do things like this :) You have my respect.
pabst_jew_ribbon5 karma
Dude, you're so metal. If you could play an instrument, what would it be?
Questica17 karma
I'm literally metal, theres some in my neck!
Guitar so I could pick up even more babes.
angeloftheafterlife3 karma
Well hey there again Questica
my question:
What was is that caused the C1-C2 fusions? Do you think what you have had to go through has exacerbated your mental conditions?
Questica6 karma
The reason I had to get C1-C2 fusions was because of Os Odontoideum.
The Os Odontoideum probably happened at 3-4, I think it was caused by chiropractic but I have little evidence for that.
The C1-C2 fusions took away the chronic pain I had for 7 years.
TheMichelotti1 karma
I LOVE that video game!!! I played that game for years! Banjo Twooie is really good, too. You should totally get it!
PrinterIsOnFire1 karma
What RPG system mechanics do you particularly like and/or dislike, and any reasons why?
I spend a lot of time messing around with them, so I always like to hear what other people think.
Questica1 karma
D&D 3.5 is the system I started on, and its really well done but the combats a bit slow.
Pathfinder is really similar to 3.5, so its something you might also want to try.
I try to homebrew a lot of my rules, and something I almost always include in my games is armor class checks.
mahhhhhh2 karma
If you could go on a three week long vacation, where would you travel to and what would you do?
Questica1 karma
I actually just got back from a 3 week long vacation 2 days ago, it was to Victoria with my girlfriend. If I could go anywhere though... I really don't know, probably somewhere in Europe.
TheEpicDuck2 karma
I went to Shriner's for my scoliosis, and they definitely didn't help me at all :/ How was your care?
Questica7 karma
Which shriner's did you go to and why didn't they help you?
My care was great, I don't even live in the united states, they constantly bus me from BC down to oregon.
mclovinsgirl1 karma
My stepdad's a Shriner and is actually president of his local chapter, so it's cool to hear the stories of kids who benefit from that organization since I know so little about it haha. I know Shriner hospitals are known for their burn and orthopedic centers, but how are they regarding mental health treatments? I have bipolar II disorder and a minor case of generalized anxiety, so I'm curious about how they're treating you. I'm also a psych major (planning to continue working for a mental health awareness organization) and I want to say how inspiring it is that you're still around despite all the mental struggles you have to endure on top of your other medical problems. Stay awesome!
xyzwave1 karma
Can you elaborate on the bad drug experience? Which class of drugs (hallucinogen, stimulant, etc) and what made the experience negative?
biernas1 karma
Wow I'm glad you are doing this. I just recently (this week) joined the Shriners team as a volunteer. I'll be in the child life area hanging out with patients such as yourself. Have any suggestions for a new volunteer? Also how has your experience been with the Shriners community so far?
P.S. the location I'm at specializes in orthopedics so it may very well be the same hospital.
Questica1 karma
Is it the Portland location?
There is a lot of other really great people on the child life team, maybe you should talk to them about suggestions.
drugsneverwork1 karma
How often did you smoke weed for when you were using it? Did you have bad trips when you were high?
Questica1 karma
First hallucinatory panic episode was just when I used edibles.
Second one was about a year later, I was hanging out with the pot heads and I smoked with them 3 times, third time I had another hallucinatory panic episode and decided I was done with THC.
cynical-therapist0 karma
Good news: I don't think you have Dissociate Personality Disorder. That's not a diagnosis in the DSM-5. (I'm not saying you don't have problems, but the symptom of dissociation could be attributed to other illnesses, or maybe just a limited experience related to the drug use).
I'm curious what you mean by "sociopathic tendencies" though. Have you actually done anything above and beyond the typical teenage I-don't-give-a-fuck-itis that you think qualifies as sociopathic?
Questica1 karma
Fuck, I meant http://en.wikipedia.org/wiki/Depersonalization_disorder
I lie to people all the time to make things easier. I treat my girlfriend and family like crap, I could do it worse but I understand the concept of consequences.
cynical-therapist1 karma
Under the circumstances (chronic pain, loads of stress) treating people like crap is understandable (although not acceptable). I hope you get good treatment, and not just more pills (cause I imagine you're on some meds already) for your anxiety and other issues.
ThatGuyGetsIt19 karma
What's the best movie you've ever seen?
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