I am a 26 year old who in January of this year underwent brain surgery to correct a condition to stop my brain from descending down my spine. AMA
I am 26, and was born with both Neurofibromatosis type 1, a condition where my body cannot stop the growth of tissue along the nerves causing tumors, and a more recent diagnosis of Chiari Malformation.
I was born with both , and the Chiari caused my brain stem to descend down to my second vertebra in my neck, the ongoing joke with my friends was my brain was too big for my skull which it was.
Surgery was done to help corrected I and removal of part of my skull, removing part of my spine, and putting in mesh plates, also part of my skull was reconstructed.
I was having a lot of neurological symptoms, more than I realized. Many of them I was having for year and until a head MRI they were never all placed together.
I am still in recovery, and still have a lot of medical testing being done but live a semi normal life, apart from doctors all the time, and the life changes I have had to make.
Here is a link to my blog that I am horrible at keeping up on... I did however post about the first two parts of my surgery, which some pictures...
Also just some pictures of the process of healing with the whole brain surgery... now my hair fully covers the scar thanks to some awesome stylist.