I turn 30 tomorrow, had a stroke at 18 and I've been on dialysis for last 6 years, waiting for a kidney transplant, AMA.
I'm coming up on 12 years since I had my stroke on my 18th birthday. Spent around 10 days in the hospital recovering, gaining the use of my left side back. It was then that it was noticed my kidney function had started to deteriorate. From about 18-23 I was a pretty normal at that age, although I was pretty tired and had to go for blood tests 2-3 times a week, (mostly because of the blood thinners). When I was 22, traveled for a month to Montreal (which pissed off my nephrologist, for not keeping in good enough contact, so he dropped me as a patient, and forced me to find a different one who is an amazing guy/doctor!) About a year later at 23 years old, went from being 5'3 and 120 ibs, to down to 97 ibs, and with my kidney function being below 10%, my docs took that as the sign it was time for me to start dialysis. I started on Peritoneal dialysis Did that for 2 years, (I was a terrible patient and admittedly I didn't do it regularly) and then it stopped working for me altogether, the same week I had just started a new job. Now, i'm approaching my 4th year of Hemodialysis. I've been on the transplant list, approaching 7 years, (In Alberta, (where i'm at, that's the average wait time for a kidney). Since starting Hemo, i've since become a model patient. I've made amends with the nephrologist that gave me the boot, (he's the head of the transplant team so it just made sense to play nice with him). I live at home with my mom, as I need some assistance and so does she. They never really knew what happened to my kidneys, (it was idiopathic glomerulonephritis, which means they don't know the cause either) which is why I've been super hesitant to take a kidney from family. It has been one heck of an interesting journey and my 30th b day is a time for reflection, which is why i'm doing this AMA; feel free to ask me anything.
Proof that is my fistula, where I needle my arm for dialysis.
Tl;DR Turning 30 tomorrow, been 12 years since I had a stroke and I've been on some sort of Dialysis for almost 6 years and haven't peed in 3 years. Have watched tons of TV and read many magazines in my life. Ask away!
Some kind person out there has gone and bought me Reddit Gold for my B day. i didn't think it would be such a big thing, but I have tears in my eyes. It may not be a kidney, but it'll do. Thank you very much.