Highest Rated Comments


zk312 karma

Hi, I'm currently a student working in a bone research laboratory. Other members in the lab receive funding from the FOP Society. I've got to say, the people of that society and their families are incredibly positive despite the condition and forward-thinking. It's people like you and your families that enable hope for others with rare disease like FOP thst are traditionally too rare for pharmaceutical companies to tackle.

Thank you for all that you do. I hope we can make the breakthroughs and therapies in my lab soon.

zk32 karma

To what extent is your spina bifida? I.e. occulta or fully myelomeningeocele?