hey, I have OI type 1. I have a couple of questions - elsewhere you said that you can't tell from your face that you have OI, does this mean that you don't have blue sclera (the whites of your eyes)?
Also, I want to tell you that when I was about 15 or 16, I went on a drug trial in the UK to try and increase my bone density. The drug used was zoledronate, and as far as my doctors and I could tell, my bone density increased to normal levels. Is this something you have heard of?
zhuazhuanownow39 karma
hey, I have OI type 1. I have a couple of questions - elsewhere you said that you can't tell from your face that you have OI, does this mean that you don't have blue sclera (the whites of your eyes)? Also, I want to tell you that when I was about 15 or 16, I went on a drug trial in the UK to try and increase my bone density. The drug used was zoledronate, and as far as my doctors and I could tell, my bone density increased to normal levels. Is this something you have heard of?
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