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zenarcade3420 karma

Hey! Great question and it was one that took me a very long time to answer. This will a super simplified understanding of everything: the 3 main options are biological, mechanical, and Ross. The biological valves last 10-15 years and require no blood thinners. The mechanical valves last 15-20 years and require blood thinners. The Ross Procedure trades out your pulmonary valve for your aortic valve and puts a cadaver valve into the pulmonary valve.

I ruled out mechanical almost right away- I'm very active/adventurous and in many ways still young and dumb. I haven't been great about taking all my medications in the past and I didn't want to worry about the downside of possibly breaking a leg with blood-thinners. And I ended up ruling out the Ross because I didn't like the idea of getting a valve involved that wasn't necessary (and the doubled risk of death was humbling).

Fingers crossed I'll be able to get my second valve via a catheter and it will not be nearly as intrusive of a surgery.

zenarcade3149 karma

Hey! Hope everything went well for you sister- how is she doing now?? The healing process has been harder than I ever imagined (and I really tried to get a realistic view of what it was going to be like). There's so many mood swings. Day 2 I found out there was fluid in my lungs and I would need a procedure to correct it. I needed conscious sedation to put a chest tube in. When I woke up I had memories of freaking out, pulling off my mask, yelling at the doctors, etc. I thought I died. When I came to I found out I made all of it up in my head. Due to fevers they've been checking cultures to make sure I don't have infections daily. If those came up positive I don't know if I could handle it. My mom was an ICU nurse and hasn't left my side. She's been an absolute fucking trooper and has basically been my 24/7 nurse and emotional support. You have no idea the compassion it takes to be a nurse until you really see it from this side and she has been what has allowed me to get through the crazy bumps these major surgeries entail.

zenarcade3135 karma

Yeah it's a huge perk- I should be extremely close to restriction and medication free once I'm all healed.

You guessed it- waiting until medical school. I studied chemistry/bio in college and my real interests lie in psychology but I think surgery sounds cool... so yeah basically I have nothing figured out haha.

zenarcade383 karma

Symmetrical face features, golden flowing locks, and a strong jaw line. Next question.

Haha but real talk thank you I appreciate the compliment.

zenarcade355 karma

You make a fair point. I weighted the cons of involving 2 valves , doubling risk, and increased surgery time as greater than the pros of greater hemodynamics and potential time without surgery.

It was a hard decision that took weeks and wasn't based off any formula.