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what-TBI-looks-like670 karma

Honestly, therapies and medical treatment are nice but I can’t stress enough the importance of support groups and connecting with others with brain injury. That helped me a lot, especially in the earlier days of my diagnosis. Loneliness and isolation is very common in the brain injury community.

Also, I recently started getting Occipital Nerve Blocks for my headaches and this is the first treatment that has actually helped them. It’s amazing.

what-TBI-looks-like258 karma

For the first few months after my accident, I was in complete denial (which I heard can be common). I was determined to continue living my life as if my accident didn’t happen, although that was not working out too well for me. The months after my accident are kind of foggy to me. I do remember that I was experiencing headaches for the first time in my life. I could no longer fall or stay asleep and my entire sleep cycle flipped. Emotionally, I was a complete mess. I got headaches constantly. I got spots in my vision whenever I tried to read. My school work was taking at least three times as long to complete, if I completed it at all. As time went on and my entire life was falling apart, I would tell doctors that there was something wrong with me and I couldn’t think right.

It actually never “clicked” for me. I was not knowledgeable about concussions at all and I had never even heard of a Traumatic Brain Injury. It was actually a TBI patient of my mom’s who suggested that TBI could be my problem after she heard all of my mom’s stories about me and my struggles.

what-TBI-looks-like146 karma

I used to have nightmares all the time. They usually involved bad things happening to loved ones.

what-TBI-looks-like108 karma

This will be a really long answer so I will return to this question a little later.

what-TBI-looks-like87 karma

That is actually what inspired my AMA. That AMA rubbed me the wrong way and I wanted to raise proper and informational awareness regarding TBI.